Connect with others who understand.

sign up log in
Resources
About MyLeukemiaTeam

Connect with others who understand.

sign up log in
Resources
About MyLeukemiaTeam
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hello, My Name Is Nancy And I Was Just Diagnosed With CLL This Month. Now In A Watch And Wait Period.

Hello, My Name Is Nancy And I Was Just Diagnosed With CLL This Month. Now In A Watch And Wait Period.

After reviewing so much information, I feel worn out, this site is so amazing.. My question is regarding insurance coverage? I have an HMO I noticed that the responsibility for treatment of cancer is 20% out of pocket. Are the pills I am seeing for CLL extremely expensive or will i need to think ahead and obtain another health insurance policy in addition to my HMO? I am trying to see how to take care of myself financially as this could be a burden for me as i am sure would also be for others. I… read more

posted November 19
A MyLeukemiaTeam Member

I am taking the oral medication Venclexta. The manufacturer charges $16,000 a month. My prescription plan pays about $13,000. I pay $40.
In addition, When you do an infusion, it is under your medical insurance. I had 8 infusions of gazyva at $20,000 apiece. I paid nothing.
I am extremely grateful for my insurances. I read that cancer treatment is the number one contributor in bankruptcy in older adults. America can do better than that!
Your drs office should have a “navigator” to find grants and programs to join. Some automatically exclude medicare patients.

posted November 19
A MyLeukemiaTeam Member

Thank you momof6, your comments regarding the medication and cost was very helpful. I am in shock over the costs of such meds that can save a life. This is all so new to me because i have been so healthy all of my life. Thank you again. Nancy757

posted November 20
A MyLeukemiaTeam Member

Thank you Nancy for adding me to the team

posted November 20
A MyLeukemiaTeam Member

Thank you Valerie…..I know i am getting ahead of myself here but in addition to the worry of the disease I also am alone and don’t need the financial worries that this CLL can bring on. Thanks for your answer I now know I have to do more research.

posted November 19
A MyLeukemiaTeam Member

I know how you feel about the cost of cancer medication I used good RX it saved me a lot of money then I got another insurance company and it coved it all but the premium was high I hope this helps

posted November 19

Related content

View all
Anyone Been Diagnosed With CMML (Chronic Myelomonocytic Leukemia)?
A MyLeukemiaTeam Member asked a question 💭
Sleep Apnea
A MyLeukemiaTeam Member asked a question 💭
I Have CLL. What Exactly Am I Watching And Waiting For?
A MyLeukemiaTeam Member asked a question 💭
Already a Member? Log in