I am in watch and wait mode for CLL after being diagnosed a couple of years ago. Pain and fatigue are what originally sent me to the doctor before diagnosis. Has anyone else experienced worsening pain and extreme fatigue before treatment?
How long do you need to take Gleevec. I have been taking it for twenty years. Have been in remission for at least 18 years. Still in remission.
I was diagnosed with CML Accelerated phase in April 2019. Several additional mutations as well. Been on Sprycel and in total molecular remission now. Some doctors advising transplant and others say it's reasonable to watch and wait. Anybody been in this situation?
My doctor has told me that due to being Unmutated I should be made more aware of the increased chances of tumors on lungs, spleen as well. Mixed bag of autoimmune diseases here as well.
I have been on Imbruvica for about 1 month now for CLL. When my WBC count hit 68 in mid March 2020, the doctor put me on it. 2 weeks after starting the drug my WBC count was 95. Today I had another blood test and it is up to 111. I spoke with the oncologist today and he said to not be alarmed and to expect a spike when starting the Imbruvica for the 1st month or 2 (it can double according to him), but after that it should drop dramatically. Has anyone else that is on Imbruvica noticed this initial… read more
Hi! I have been on Imbruvica for CLL for 52 months. I wonder if there will be a time when it won't work. Does anyone have an experience where they have taken this for a long time?
When I was diagnosed with CLL my “fish” panel showed I am Zap 70 positive.
My oncologist didn’t really say much about it. I’m on watch and wait with no symptoms other than wbc and lymphocytes are high.
Anyone else have this on their bloodwork?
I ask because I had an MRI recently for my shoulder. I've got some tears in my rotator cuff muscles which was the basic reason for the MRI but they noted some lesions in the humerus. Given my history they said it was possibly leukemic infiltration or bone infarction. Not sure if that is a serious problem or not. I gather it could be part of degenerative bone disease and age related. Just curious as to whether anyone else has had this.
I want to build my immune system but many suggested protocols only increase white blood cells. Are there any other kinds of immune boosters?I was diagnosed 8 months ago.