I am in watch and wait mode for CLL after being diagnosed a couple of years ago. Pain and fatigue are what originally sent me to the doctor before diagnosis. Has anyone else experienced worsening pain and extreme fatigue before treatment?
Hi Every one, just got back from my morning jog, did some exercises in my back garden, then out of the blue I fell to my knees on the lawn and couldn't breath but no pain!!. As I was near my shed I just punched the wall as hard as I could and my breathing returned. Bit odd as I don't usually have any problems with breathing, how ever that isn't to do with my question. (smile) My question is that we all on the site use acronyms for various medical conditions ye! t I don't know what they are… read more
How long do you need to take Gleevec. I have been taking it for twenty years. Have been in remission for at least 18 years. Still in remission.
Hello all and thank you for allowing me to join this group! I was diagnosed with CLL one year ago after my PCP noticed that my while cell count was a little high after being treated for a bad infection in my finger. She watched my bw for 3 months before sending me to a Hematologist, who gave me the diagnosis. This doctor told me that I don't need any treatment and I see her every 3 months for bw and a physical exam, checking my lymph nodes. My white cell count has gone from 11 up to 27 in a… read more
Am I waiting for the pain to reach a threshold? The numbers? The size of my lymph nodes? I am not getting a straight answer from my doctors.
My doctor has told me that due to being Unmutated I should be made more aware of the increased chances of tumors on lungs, spleen as well. Mixed bag of autoimmune diseases here as well.
I was diagnosed with CML Accelerated phase in April 2019. Several additional mutations as well. Been on Sprycel and in total molecular remission now. Some doctors advising transplant and others say it's reasonable to watch and wait. Anybody been in this situation?
I am interested to learn from those who have had a stem cell transplant for AML or any leukemia for that matter. I would like to ask what you percent of donor cells did you have after transplant? How long since your transplant. Anyone who transplant has not cured? Thanks for any information.
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