D.D. Try to find a grant that will help you pay for some of your expenses. I have a LLS grant that provides up to 10k worth of expense relief. It's been a life saver and I haven't had to sell any of my Cats or children for medical experiments. JK😉

I have been diagnosed with CMML. Currently not receiving treatment - just "watchful waiting". It's like being put on hold without the Musak. Fortunately, I am in the UK. So if/when treatment starts, it will be free. One thing less to worry about.

Hi I was diagnosed in January, but my symptoms started 2 years ago.My symptoms were pain,crippling chills,mouth sores,night sweats and chronic fatigue. At first I was given Iron transfusions, which didn't help,then blood transfusion, which made me very sick,I got to the point my legs would give out.Many CT Scans.I was told I had CMML. The cancer doctor wanted me to do blood work every 6wks,But I decided to get a second opinion, I went to Dana Faber and saw a doctor there I was put on Jakafi, trial and error my dosage was lower, except for the chronic fatigue, I'm doing better... I wish you success.

Debbrady6 update: now I have no blasts and no symptoms.

My back, which may or may not be related, causes some sciatic pain.

This is year two. I go monthly for osteoporosis shots (I supposedly don’t have it) and blood tests.
I hope against hope to be in the same place from now on!

It’s the closest to remission I will ever have since I’m too old for a bone marrow transplant.

Keep an eye on the itching. I ended up with small red spots and sometimes they developed into sores that wouldn't heal. Find the best doc in your area and a stem cell transplant center as it's the only cure for CMML. My transplant team has zeroed in on a donor and October appears to be when I'll go through this process and hopefully get a new lease on life. Hopefully you're getting your blood tested and they are keeping your hemoglobin counts up enough to help with the fatigue as it could get worse if/when they start you on some chemo and/or other medications.