D.D. Try to find a grant that will help you pay for some of your expenses. I have a LLS grant that provides up to 10k worth of expense relief. It's been a life saver and I haven't had to sell any of my Cats or children for medical experiments. JK😉

Debbrady6 update: now I have no blasts and no symptoms.

My back, which may or may not be related, causes some sciatic pain.

This is year two. I go monthly for osteoporosis shots (I supposedly don’t have it) and blood tests.
I hope against hope to be in the same place from now on!

It’s the closest to remission I will ever have since I’m too old for a bone marrow transplant.

I have been diagnosed with CMML. Currently not receiving treatment - just "watchful waiting". It's like being put on hold without the Musak. Fortunately, I am in the UK. So if/when treatment starts, it will be free. One thing less to worry about.

Keep an eye on the itching. I ended up with small red spots and sometimes they developed into sores that wouldn't heal. Find the best doc in your area and a stem cell transplant center as it's the only cure for CMML. My transplant team has zeroed in on a donor and October appears to be when I'll go through this process and hopefully get a new lease on life. Hopefully you're getting your blood tested and they are keeping your hemoglobin counts up enough to help with the fatigue as it could get worse if/when they start you on some chemo and/or other medications.

I, too, have CMML. Was diagnosed in May, 2022 thru a bone marrow biopsy. I'm not on any.medication yet since my numbers are stable. My lab numbers were questionable for several years and I had unexplained weight loss so I've probably had CMML longer than the diagnosis. Fatigue is overwhelming many days but rest or short naps help. I also have bruises and occasional night sweats. My faith in God and prayers from my family and friends sustains me each day.