Leukemia

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Imbruvica

Imbruvica

I'm a coffee drinker. I only have one or two cups in the morning. Will it effect the Imbruvica? I take all my meds around 9 or 930am with food.

A MyLeukemiaTeam Member said:

Yeah I like green tea

posted about 7 hours ago

CLL zap 70 +

CLL zap 70 +

When I was diagnosed with CLL my “fish” panel showed I am Zap 70 positive.
My oncologist didn’t really say much about it. I’m on watch and wait with no symptoms other than wbc and lymphocytes are high.
Anyone else have this on their bloodwork?

A MyLeukemiaTeam Member said:

As far as I know everyone diagnosed with leukemia has a Zap 70 - complete blood work up panel. I know I did from the very beginning. I was in watch n… read more

posted about 11 hours ago

Any suggestions on energy supplements????? Momma of 5 and I'm tiredd!!

Any suggestions on energy supplements????? Momma of 5 and I'm tiredd!!

A MyLeukemiaTeam Member said:

For protein, I like the Core Power drink. There is one that has 42 grams of protein. I usually drink half a bottle at a time, once a day or so. It also… read more

posted about 16 hours ago

I was diagnosed with Leukemia in my kidneys this past July. I had a week of chemo and chemo pills. I stopped all treatment and came home.

I was diagnosed with Leukemia in my kidneys this past July. I had a week of chemo and chemo pills. I stopped all treatment and came home.

I came home under palliative care and saw an aide twice a week and a nurse that comes once a week. The nurse still sees me, I no longer need the aide to come. I'm feeling good, under the circumstances, and doing some normal things. Nothing crazy has happened since I came home. How would I know if the chemo treatment put me back into remission? I'm currently not doing follow up… read more

A MyLeukemiaTeam Member said:

It depends on your lymph notes swelling spleen and your blood work and if the lymph notes are causing you problems, mines was my throat swelling my bro.… read more

posted 14 days ago

Does medical marijuana qualify as a helpful legal drug for CML?

Does medical marijuana qualify as a helpful legal drug for CML?

A MyLeukemiaTeam Member said:

You can also use CBD with some THC. These two together will also help with out the high.

posted about 13 hours ago

Is medical marijuana helpful to CML patients?

Is medical marijuana helpful to CML patients?

Do you think I could get a prescription for medical marijuana since I have CML?

A MyLeukemiaTeam Member said:

My dr po pood that for me I have too many respiratory issues. I didn’t ask but was at a conference he was at and when asked the question, he did not… read more

posted 5 days ago

Anyone dealing with CML Accelerated phase?

Anyone dealing with CML Accelerated phase?

I was diagnosed with CML Accelerated phase in April 2019. Several additional mutations as well. Been on Sprycel and in total molecular remission now. Some doctors advising transplant and others say it's reasonable to watch and wait. Anybody been in this situation?

A MyLeukemiaTeam Member said:

Did you have a Bmt?

posted 14 days ago

Is there anyone who was diagnosed with CLL while in their 40’s?

Is there anyone who was diagnosed with CLL while in their 40’s?

I was diagnosed with CLL at the age of 41. My hematologist says 1 in 6 million have CLL at my age. I’ve not met another in my age group with CLL and just curious.

A MyLeukemiaTeam Member said:

I was diagnosed when I was 48 and had the same problem. No one in my age group with CLL. It was really hard for me because at the time I had 2 small… read more

posted about 11 hours ago

Sprycel

Sprycel

I would like to know if anyone with CML has had trouble with their eyes. I am on sprycel. Before I was n gleevac.

A MyLeukemiaTeam Member said:

My eyes are very swollen all the time. My vision isn't the greatest. Stronger glasses every visit on gleevec as well

posted 1 day ago
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