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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Effectiveness Of Vaccine While On Alcalabrutinib. ?

Effectiveness Of Vaccine While On Alcalabrutinib. ?

I'm currently on Alcalabrutinib (Calquence) for CLL. All my bloodwork shows I'm in normal ranges for WBC, RBC, Hemoglobin, as well as other indicators and am considered in remission for 6 months. I've had both Pfizer vaccine shots 60 days ago with no side effects or issues. After an antibodies test 4 weeks after my second shot, my specialist claims my efficacy is 'less than robust' against COVID 19. Test results were: Anti-SARS-CoV-2 Spike Protein IgG Index: 0.02 S/CO std range: 0.00 -… read more

A MyLeukemiaTeam Member said:

It would seem to me that someone, somewhere should be doing a clinical trials to access the effectiveness of multiple vaccines. My antibodies went into the high level after the first Moderna shot… read more

posted 5 days ago

Episodes Of Feeling Tightness In Shoulders And Neck

Episodes Of Feeling Tightness In Shoulders And Neck

When I feel stressed out or anxious my shoulders and neck get tight and I overthink every little feeling in my chest. Seen a cardiologist who says it's not my heart. Anyone else get this too?

A MyLeukemiaTeam Member said:

Agreed. Been taking CBD tincture and it seems to help... Thanks!

posted 5 days ago

Post Stem Cell Transplant Weight Loss.

Post Stem Cell Transplant Weight Loss.

During my initial one month hospitalization where I underwent a week of 7/3 chemotherapy I lost 20 lbs. In the 6 weeks out of the hospital I have put on 24 pounds. I am curious how much weight I can expect to loose with the 3-4 week hospital stay post transplant. I am tentatively scheduled for my transplant the end of this month. Thanks in advance.
Rich

A MyLeukemiaTeam Member said:

I lost 45 pounds post transplant due to mucositis, I couldn’t eat or drink and was put on IV total body nutrition. I have since gained 25 pounds back

posted 10 days ago

Acute Promyelocytic Leukemia

Acute Promyelocytic Leukemia

Is anyone diagnosed with acute promyelocytic leukemia? My husband is under treatment with ATRA+ATO for 6 weeks already. I would really appreciate if you could give some information.

Pneumonia

Pneumonia

Is Pneumonia after chemo very serious? Could my hubby lose his battle with AML because of it?

A MyLeukemiaTeam Member said:

That’s horrible! I’m so sorry to hear that and will keep praying! Ask for a patient advocate and if necessary, go to Administration in the hospital and ask for the CEO! I don’t care how big a… read more

posted 18 days ago

Venclexta

Venclexta

Does anyone’s urine smell weird from taking Venclexta - or maybe from the Allopurinol that helps break it down?

A MyLeukemiaTeam Member said:

Thank you!

posted 19 days ago

Side Effects Of Intermediate Chemo

Side Effects Of Intermediate Chemo

My husband was diagnosed this Easter with AML and has a blood clot in his lung and leg. His WBC was 300,000 to begin with . His first week of chemo plus platelets and now he is getting fevers and slight infections plus he feels cold. Is this part of the chemo? And has anyone been treated at Miami U?

A MyLeukemiaTeam Member said:

Carla, I was diagnosed with ALL in Sept 2019. I remember in the beginning I had night sweats. When I would wake I’d feel as thou I was freezing. I also received a few platelet transfusion because my… read more

posted 20 days ago

I Have CLL/ B Cell And I Had Dental Work Done Last Year, With Bridges And Crowns...

I Have CLL/ B Cell And I Had Dental Work Done Last Year, With Bridges And Crowns...

One of the 3 unit bridges fell out, Dentist working with me but is there any other agencies that can help me pay what the Insurance doesn't?

A MyLeukemiaTeam Member said:

Dwayne, I hope you are able to get some help from them. It is unbelievable how expensive some of these medications and treatments are.

posted 4 days ago

Is Anyone Taking Herbal Supplements Like Essiac? I Want To Avoid Chemotherapies.

Is Anyone Taking Herbal Supplements Like Essiac? I Want To Avoid Chemotherapies.

A MyLeukemiaTeam Member said:

I too want to take herbal, am drinking green tea,taking mega vitamin d and was gonna start on tumeric

posted 11 days ago

Dr. Appointment Left Me With So Many Questions.

Dr. Appointment Left Me With So Many Questions.

I just had my first appointment after 6 weeks being on the chemo pill. The Dr. said my red blood cells are good but my white blood cells are still to high. She is keeping me on the treatment I am on because its only been 6 weeks. She did scare me by saying that if it does not improve she may have to put me on a stronger medication that has more side effects. I feel discouraged, is there something I can do along with the medication to help? I left not sure if I got good news or bad news… read more

A MyLeukemiaTeam Member said:

Melissa I’m also on Calquence and I’ve asked this very question of my Doctor and I don’t think there is much you can do other than follow the directions in taking the pill!

posted 12 days ago
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