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I'm currently on Alcalabrutinib (Calquence) for CLL. All my bloodwork shows I'm in normal ranges for WBC, RBC, Hemoglobin, as well as other indicators and am considered in remission for 6 months. I've had both Pfizer vaccine shots 60 days ago with no side effects or issues. After an antibodies test 4 weeks after my second shot, my specialist claims my efficacy is 'less than robust' against COVID 19. Test results were: Anti-SARS-CoV-2 Spike Protein IgG Index: 0.02 S/CO std range: 0.00 -… read more
It would seem to me that someone, somewhere should be doing a clinical trials to access the effectiveness of multiple vaccines. My antibodies went into the high level after the first Moderna shot… read more
During my initial one month hospitalization where I underwent a week of 7/3 chemotherapy I lost 20 lbs. In the 6 weeks out of the hospital I have put on 24 pounds. I am curious how much weight I can expect to loose with the 3-4 week hospital stay post transplant. I am tentatively scheduled for my transplant the end of this month. Thanks in advance.
That’s horrible! I’m so sorry to hear that and will keep praying! Ask for a patient advocate and if necessary, go to Administration in the hospital and ask for the CEO! I don’t care how big a… read more
My husband was diagnosed this Easter with AML and has a blood clot in his lung and leg. His WBC was 300,000 to begin with . His first week of chemo plus platelets and now he is getting fevers and slight infections plus he feels cold. Is this part of the chemo? And has anyone been treated at Miami U?
Carla, I was diagnosed with ALL in Sept 2019. I remember in the beginning I had night sweats. When I would wake I’d feel as thou I was freezing. I also received a few platelet transfusion because my… read more
I just had my first appointment after 6 weeks being on the chemo pill. The Dr. said my red blood cells are good but my white blood cells are still to high. She is keeping me on the treatment I am on because its only been 6 weeks. She did scare me by saying that if it does not improve she may have to put me on a stronger medication that has more side effects. I feel discouraged, is there something I can do along with the medication to help? I left not sure if I got good news or bad news… read more