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Leukemia

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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Are The Full Side Effects Of Venetclax

What Are The Full Side Effects Of Venetclax

Since taking 400mg daily of venetaclax I have been suffering sever itching all over my body, several small sores on my scalp, my fingernails don't seem to be growing and my cuticles are sore to the touch. and my eyes run constantly. For the first 4 weeks on VenetoClax I had no symptoms whatsoever, so I am curious as to if these side effects are common to VenetoClax or not. Keep safe everyone.

A MyLeukemiaTeam Member said:

Hi,
You make me laugh with the sandpaper thing!!
As for being a "nobody"....just stop it and be the bezt example for your daughter moving forward. Show her how to behave through adversaty. Best wishes

posted about 5 hours ago

Low Blood Pressure? CLL

Low Blood Pressure? CLL

As I have said in previous posts, I have always been relatively fit and my blood pressure was always in the 120/80 range until I started dealing with CLL symptoms. Recently my blood pressure has been running really low (109/66, 103/69, 110/69, 96/79, 108/66). I feel really crappy and have had episodes of vomiting, headaches, light headedness, and fatigue. I also have the 'so tired I can't think' feeling alot. Does anyone else have similar issues?

A MyLeukemiaTeam Member said:

My b/p Is usually very club but every since I started chemo it’s been running normal to hi. Nothing seems to be worrying the doctors about it but it does me because I’m constantly fatigued, tired, And… read more

posted 2 days ago

Has Anyone Experienced Memory Loss After Transplant?

Has Anyone Experienced Memory Loss After Transplant?

I was diagnosed with AML. I had a bone marrow transplant back in November 2021 and a few days after the transplant i woke up and didn't know why I was in the hospital. I didn't know u had been diagnosed with leukemia in 2020 seemed like the past 2-3 years of my life where just deleted. To me it felt like i fell asleep then woke up and alot of things had changed gas prices covid. I got married, moved to a new place and all this was deleted. The only reason I know these things happened is because… read more

A MyLeukemiaTeam Member said:

I’ve really had/have a memory problem, not in remembering past events but I sometimes can’t remember a person’s name, or I can’t talk about something like a cooking utensil because I can’t remember… read more

posted 2 days ago

What Does “GAF” Mean?

What Does “GAF” Mean?

A MyLeukemiaTeam Member said:

That is funny, I missed it I guess. I don't remember seeing it. Here i thought I was being thorough with all the articles! :)☺️

posted 5 days ago

What Does “GAF” Mean?

What Does “GAF” Mean?

A MyLeukemiaTeam Member said:

I agree with you call your doctor and get his opinion. Take care. , Joanel

posted 4 days ago

Is It Ok To Receive Chemo For Leukemia When You Have Congestive Heart Failure.

Is It Ok To Receive Chemo For Leukemia When You Have Congestive Heart Failure.

My 80 year old husband has Leukemia that came from his Lymphoma treatment….needs two more rounds of treatment for his lymphoma. How safe is it. Can it hurt his heart?

Do You Use Things Spiritual In Dealing With Your Cancer?

Do You Use Things Spiritual In Dealing With Your Cancer?

Do you use things spiritual in dealing with your cancer?

If so what do you use? Prayer? Meditation? Certain books? Church, synagogue or mosque? Music? Poetry? I ask because I'm always looking for useful spiritual tools. Personally I use 12 step material and the book A Course In Miracles along with prayer. And there are certain organizations that I've found useful, that send out free booklets and magazines. But I'm always looking for useful things to add to my repertoire.

A MyLeukemiaTeam Member said:

I will check out YouTube! Thanks for the info!

posted 8 days ago

Hair Loss And Calquence

Hair Loss And Calquence

I've been on Calquence now for 3 years (twice a day, everyday). I have notice when I brush my hair and wash my hair there will be handfuls coming out. When I wash my hair, I have to clean the drain 4 to 5 times to let the water drain. When I brush my hair, hair just falls all over my clothes and I get handfuls out of the brush. Is anyone else having this problem taking Calquence ?

Thanks,
Vonda Brown

A MyLeukemiaTeam Member said:

What is your wbc?

posted 2 days ago

Dizziness While Taking Calquence

Dizziness While Taking Calquence

I have CLL diagnosed 2019, I was in watch and wait intil 2020 when my blood work numbers increased and my DR put me on Calquence. It has been very affective in my treatment as all my numbers from my bloodwork are in a normal range. However for the last several months I have experienced dizziness and feeling off balance constantly. It has become almost debilitating. Could the Calquence be doing this?

A MyLeukemiaTeam Member said:

Thanks to all for the responses. This is something I must talk to my DR about. The only otber side effects I have are skin issues

posted 8 days ago

After My First Set Of Chemo

After My First Set Of Chemo

I just finished up my first set of 6 months. (It actually took 9 months due to Covid and hospitalization) What happens next? I had a PET SCAN and was told that the chemo is helping, but I still have nodes in a few of the places that I had in the beginning. If chemo is helping then why did the doctors stop the Chemo? I don’t understand.
I have cll, I know that I’ll live with it for the rest of my life, but if something is helping why stop it?

A MyLeukemiaTeam Member said:

Our attitude is really the only thing that we have control of...I'm not saying it's easy for any of us but we can win this battle....

posted 7 days ago
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