Leukemia

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ALL how deadly is it for young adults?

ALL how deadly is it for young adults?

Did anyone recently died of ALL in their 20s or early 30’s? Our son was diagnosed 3 years ago, and passed away in May this year after he turned 27 years old. Tried all the best and latest available treatments including several clinical trials at NIH and MD Anderson, CARt, NK cells, stem cell transplant etc.
I hate Leukemia - it’s a horrible cancer

A MyLeukemiaTeam Member said:

We were so hopeful that he could be cured after his first treatment worked and he was cancer free for over a year...His oncologists had all kinds of… read more

posted about 2 hours ago

What does this mean?

What does this mean?

P190 AND P210 NOT DETECTED

A MyLeukemiaTeam Member said:

Thank you so much!

posted 12 days ago

Do you have night sweats with CLL

Do you have night sweats with CLL

A MyLeukemiaTeam Member said:

Night sweats, in general you know you’re experiencing them when it feels like someone dumped a gallon of water on you. Hard to sleep with them, then the… read more

posted 14 days ago

I was diagnosed with Polycythemin Vera. is that concidered a CLL?

I was diagnosed with Polycythemin Vera. is that concidered a CLL?

A MyLeukemiaTeam Member said:

it can lead to a serous form of leukemia if not treated right away per mayo clinic.

posted 17 days ago

What are the chances?

What are the chances?

My sister in law was diagnosed with leukemia last year at 66, had a stem cell transplant and is doing well. This week my brother in law was diagnosed with leukemia. Seems odd two people from the same household get leukemia. One doctor in passing asked if they lived by cornfields (which they are surrounded by) due to all the chemicals sprayed on the crops. Has anyone else experienced this?

A MyLeukemiaTeam Member said:

Hope the transfusion goes well, never had to vet the transfusion. Been treated a couple times and hanging in remission while on Venclexta now.

posted 16 days ago

Gleevec

Gleevec

How long do you need to take Gleevec. I have been taking it for twenty years. Have been in remission for at least 18 years. Still in remission.

A MyLeukemiaTeam Member said:

Me too!massage frankincense essential oil under your eyes at night helps a bit

edited, originally posted 7 days ago

Arzerra

Arzerra

At what point is meds used to treat CLL. Is. There a certain stage I have to get to before treatment begins?

A MyLeukemiaTeam Member said:

All information is great ive learned a lots from others here

posted 16 days ago
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