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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Nutrition In My Daily Diet I Eat An Orange, Apple & Sultanas And Green Vegetables. Is There Any Thing I Need To Consider

Nutrition In My Daily Diet I Eat An Orange, Apple & Sultanas And Green Vegetables. Is There Any Thing I Need To Consider

My diagnosis yesterday stated that my condition was.
1. Chronic B cell lymphoproliferative disorder
2. Flow = disorder? atypical CLL- FISH panel negative [ lymphoid subtype not fully specified]
The recommendation is Venetoclax by infusion.

This is all beyond me so what would anyone recommend diet-wise when taking intravenous Venetolax

Thank you and God be with you all

A MyLeukemiaTeam Member said:

You are welcome. Keep safe as well :)

posted 2 days ago

Imbruvica & Anxiety And Depression

Imbruvica & Anxiety And Depression

I’ve exhausted all chemo options and am currently on Imbruvica for my CLL (2 & 1/2 yrs in) out of nowhere depression & anxiety set in. Has anyone experienced this on Imbruvica?

A MyLeukemiaTeam Member said:

I ll check that out. Thank you!

posted 5 days ago

Joint Pain In Wrist, Hand And Ankles.

Joint Pain In Wrist, Hand And Ankles.

I have CLL and have been experiencing terrible, constant pain in one hand and wrist and occasional pain in other joints. Anyone else have this problem? Thanks so much.

A MyLeukemiaTeam Member said:

I have been on Ibruvica for almost a year and it seems to be more now I also have trouble with cramping in my hands. I hope yours get better!

posted 2 days ago

What Has Surprised You About Leukemia?

What Has Surprised You About Leukemia?

A MyLeukemiaTeam Member said:

If your husband left you for another women your marriage was wrong from the beginning. I went through the same thing after 27 years of marriage. When you have CLL you don't have any energy to deal… read more

posted 7 days ago

What Are Some Of Your Side Effects From Chemo

What Are Some Of Your Side Effects From Chemo

I have had a lot of side effects and other medical problems since my diagnosis And bring on multiple types of chemo how do u handle it

A MyLeukemiaTeam Member said:

Fire the caregiver WITH explanations to the company she came from or the licensing facility. That’s theft and does not belong in your home! Locking caps are available for pain meds.

posted 15 days ago

Anyone That Has AML Or MDS That Has Been Though A Transplant

Anyone That Has AML Or MDS That Has Been Though A Transplant

My husband age 71 has met with a bone marrow transplant doctor and they feel he is a good candidate to do a stem cell transplant. Of course he is scared and nervous of the complications. I would like to hear your experiences.

A MyLeukemiaTeam Member said:

I agree. I was so blessed to have my sister as a donor. I just started with a bit of eye irritation. I am hoping it is not GVHD. I will see my eye MD on Monday. He should be able to determine if it… read more

posted 6 days ago

Covid Boosters?

Covid Boosters?

How is everyone feeling about the Covid boosters? I had the regular first 2 shots, but due to passing out the day after my second shot my oncologist said that she didn’t advise me getting the boosters
2 weeks ago I got sick, at first thinking it was just sinus congestion I let it go for a couple of days. But suddenly I couldn’t catch my breath, ended up in the hospital for 4 days because it turned out to be bacterial influenza and pneumonia as well as being septic. (This is why I haven’t been… read more

A MyLeukemiaTeam Member said:

I’ll have to check into it. Thank you

posted 5 days ago

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

A MyLeukemiaTeam Member said:

Do they contain caffeine? I have AFIB so even a cup of coffee makes my heart go crazy. What kind do you use?

posted 2 days ago
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