CEL must be rare. I have not seen where anyone else has it. Right now my worst reaction is extreme itching. I take two
prescriptions for itching daily. Plus, I use Sarna Lotion and CeraVe lotion daily. I am hopeing for more relief somehow.
Any suggestions that have been successful for others with CEL would be welcomed.
My daughter has horrible mouth sores caused from methotrexate. How can we treat these and avoid them in the future?
Chemo stopped working numbers aren’t where the doctors want them to be so transplant is on hold
Hi, I was wondering if anyone has had any side pain under my right breast, there is a hard area....didn’t know if this was related to my liver....my Dr appt isn’t for another 2 weeks...
Hello, I'm Day +6 post-stem cell transplant, seven days after conditioning chemo ended. Experiencing severe abdominal cramps, interfering with sleep, and frequent diarrhea. What have you done to alleviate this?
Does anyone have B Cell PH- ALL with an allogenic BMT as treatment? Did you relapse or acquire a secondary cancer? My mind is sometimes consumed by the thought of getting cancer again whether it be the same or a different one altogether. I guess I'm wondering about the odds of it happening.
Has anyone taken tasigna? If so what side effects are you having or had and do they ever ease up or disappear. I start this pill next week and I'm scared. I was diagnosed in July 19 with CML and was on sprycel but had so much fluid retention got lots of fluid in my lungs so my doctor took me off of it. I was lucky though in a short time with sprycel my numbers went down to undetected and that was the only side effect. But man what a bad side effect. Feels like your drowning. Any help is appreciated.
I was dx with ALL in 2007. 3yrs of treatment. Was absolute hell. Lots of pain before, during and post treatment. My question is; Has anyone continued to experience moderate to severe joint, spinal and neuropathy pain that did not go away after tx and instead got worse as time went on. I'm 10yrs post treatment now and have had a lot of damage to my lower and thoracic spine. Both the vertebre, discs and the cord it's self. I had a Nevro hf 10 Spinal Cord Stimulator placed… read more
My 1st phase of feeling bad with CML was bruises, not sleeping, really dizzy.
The WORST!!! I got a rash on my arms, back, chest and upper legs. I can deal with not sleeping, being super dizzy, not being able to remember anything, not being able to eat etc. BUT, the rash has tormented me for 5 months. I'm pretty tough, and keep focused, but this is beyond description! I was put on steroids, but told I can't stay on them. I went to… read more