Connect with others who understand.

sign up log in
About MyLeukemiaTeam

Leukemia

Questions + Answers

Don't see your question? ask question
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

I Was Diagnosed In 2017. And Finally Proceeding With Stem Cell Transplant. I Am In URGENT Need Of A Caregiver During My SCT Recocery.

I Was Diagnosed In 2017. And Finally Proceeding With Stem Cell Transplant. I Am In URGENT Need Of A Caregiver During My SCT Recocery.

Please read very important. In the next few months its possible I will be having a STEM CELL TRANSPLANT . I need one or more people, (one at a time) to stay with me for 3 mths. Roughly. We'd be staying in a nice PAID MOTEL. In Gilbert, Arizona. The help is basic. Nothing to hard. I can go into more details when they are needed. I need 1-2 SOLID PEOPLE AND A COUPLE FLOATERS to relieve… read more

A MyLeukemiaTeam Member said:

Thank you, I'm having it done at john anderson md cancer Center in Gilbert AZ . I will contact ACS Today. Thx again

posted about 16 hours ago

I Have CML And Take Sprycel. Is It Safe To Take The Covid Vaccine? What Did Your Doctor Recommend?

I Have CML And Take Sprycel. Is It Safe To Take The Covid Vaccine? What Did Your Doctor Recommend?

A MyLeukemiaTeam Member said:

I also have CML .My Oncologist told me to definitely get the Covid Vaccine. Received My First Thursday. Scheduled for my Second Vaccine 3/17. Can’t wait… read more

posted 4 days ago

Stagging

Stagging

I was diagnosed at stage 4, does this mean I am less likely to respond to treatment?

A MyLeukemiaTeam Member said:

Thank you

posted about 7 hours ago

Has Anyone Else Gone Into Remission With CML?

Has Anyone Else Gone Into Remission With CML?

I was told it's incurable and now they're saying since the leukemia hasn't been showing in my blood tests for two years that they can take me off chemo pill (sprycel) and just check me to see if it comes back. Anyone else do this and what happened? I'm truly scared to go off. Help anyone?

A MyLeukemiaTeam Member said:

I know exactly how you feel Charlotte, I will go over my options again next
visit to my hematologist. Thank you for your input.

posted 10 days ago

Tasigna Medicare Coverage

Tasigna Medicare Coverage

I am taking Tasigna and now am Medicare eligible. What type of prices and plans have been working for you? Any recommendations and words of wisdom are greatly appreciated!

Thanks!

Kim.

A MyLeukemiaTeam Member said:

Novavette, Medicare is a tremendous help but you need gap insurance and since I’m make a small amount per month I had to get a grant to cover the extra… read more

posted 1 day ago

Imbruvica

Imbruvica

Has any one used the pill Imbruvica ? If so have you seen any improvements on this ? My husband wanted me to try ir so I started this morning on it and I see alot of side effects. Worrying alot abut this Any input on it is welcome..Thank You All Have a Blessed day

A MyLeukemiaTeam Member said:

Well , I read it takes about 4 mo till your body adjust to it but it's the afibs I hate, having one now, took my blood thinner and heart rythum pill,… read more

posted 7 days ago

I Was Diagnosed With Cmml 2 Leukemia September 2019 . Has Anyone Ever Heard About This Type Before?

I Was Diagnosed With Cmml 2 Leukemia September 2019 . Has Anyone Ever Heard About This Type Before?

I would like to find some people to talk too about this. I really feel alone. My family members really love me, they just can't face it. So I kept it inside. I know that's not good for me . that's why I joined.

A MyLeukemiaTeam Member said:

Type 2 CMML means you have 5-19% blast cells in your blood and 10-19% in your bone marrow. per Google.

posted 21 days ago

Is Anyone Taking Onureg?

Is Anyone Taking Onureg?

Hello,
I am currently in remission with AML. I am taking the pill form of Onureg. I’ve been on it for 3 months with no side effects. Is anyone else taking this medication? I take a Zophram 30 minutes prior to the Onureg.

A MyLeukemiaTeam Member said:

Zophran is great. Also, Compozine is good.

posted about 1 month ago

Can You Have A Normal CBC In The Early Stages Of Leukemia?

Can You Have A Normal CBC In The Early Stages Of Leukemia?

A MyLeukemiaTeam Member said:

Yes you can, at least I did, no symptoms except being tired for six years but I did have an elevated Abnormal white cell count. In 2020 my count started… read more

posted 24 days ago
Continue with Facebook
Sign up with your email
Already a Member? Log in