Leukemia Questions and Answers | MyLeukemiaTeam

Connect with others who understand.

sign up log in
About MyLeukemiaTeam

Leukemia

Questions + Answers

Don't see your question? ask question
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Any Oncologists I Can Talk To On Short Notice?

Any Oncologists I Can Talk To On Short Notice?

My father at 76 years old went into the hospital after getting sick a week ago from an infection. It was found he had a fistula and now we find out he has leukemia. They are giving him weeks to live because they can’t fix the fistula due to having cancer. I’m trying to get a second opinion because if it wasn’t for the infection we could try to save his life from cancer. I want to make sure we have to give up like the hospital basically has.

A MyLeukemiaTeam Member said:

Yes I believe that too Prayers for all

posted 3 days ago

I Have AML, What Can I Expect?

I Have AML, What Can I Expect?

I have been diagnosed with AML. Started as MDS 6 years ago. With my chromosomes being all messed up, I am told the outlook is dismal. What can I expect?

A MyLeukemiaTeam Member said:

I did 7 months of chemo, 3 weeks in the hospital 1 week out. Then I did 10 months of midostaurin at home. I see a specialist at UCSF in San Francisco,… read more

posted 9 days ago

Anyone Familiar With T-PLL?

Anyone Familiar With T-PLL?

A MyLeukemiaTeam Member said:

Thanks. I think I’m too old for a transplant. And I’m grateful that although it’s supposed to be aggressive mine hasn’t been so far.

posted 18 days ago

Imbruvica

Imbruvica

I'm on medicare and AARP United Health care and RX plan but they don't cover very much of the cost. I have a grant but it will soon be gone. Any helpful suggestions for affording Imbruvica?

A MyLeukemiaTeam Member said:

I live in MS not old enough for Medicare yet, but I do have a Medicaid type insurance here called Magnolia Health and all I pay is $1.00 co-pay but I… read more

posted 16 days ago

After 8 Years Of Remission It’s Back Again.

After 8 Years Of Remission It’s Back Again.

Started chemo again. This time 1 treatment a month for 4 months had my first 7 hr treatment on Monday did not go well had a really bad reaction. After being filled with steroids and stomach meds we re started. Just now getting my sea legs and pray I don’t lose my hair. And pray my next treatment on the 29th of Sept goes better they said it should now they know what to expect. Anyone else experiencing this

A MyLeukemiaTeam Member said:

Thank for the insight

posted 15 days ago

I Have Been Diagnosed With CMML My Spleen Is Enlarged I Have Been Given 4 Units Of Blood I Want To Know If I Should Get A Second Opinion

I Have Been Diagnosed With CMML My Spleen Is Enlarged I Have Been Given 4 Units Of Blood I Want To Know If I Should Get A Second Opinion

I see a doctor oncologist in private practice I take hydroxyruera 500 mg. twice a day, should I get a second opinion, with a cancer center where doctors can consult with other doctors.

A MyLeukemiaTeam Member said:

My oncologist says it never hurts to get a second opinion.

posted 26 days ago

I Don't Understand What The Numbers Mean

I Don't Understand What The Numbers Mean

Hello all and thank you for allowing me to join this group! I was diagnosed with CLL one year ago after my PCP noticed that my while cell count was a little high after being treated for a bad infection in my finger. She watched my bw for 3 months before sending me to a Hematologist, who gave me the diagnosis. This doctor told me that I don't need any treatment and I see her every 3 months for bw and a physical exam, checking my lymph nodes. My white cell count has gone… read more

A MyLeukemiaTeam Member said:

Vonda you are right were i an 14200 last time 17000 this time it may go down again yes i am not worrying about it abd were at same number dont worry i… read more

posted 15 days ago

I Have CLL. What Exactly Am I Watching And Waiting For?

I Have CLL. What Exactly Am I Watching And Waiting For?

Am I waiting for the pain to reach a threshold? The numbers? The size of my lymph nodes? I am not getting a straight answer from my doctors.

A MyLeukemiaTeam Member said:

ScottyWegner it does to me. This watch and wait thing is for the birds. The last three visits I have complained about pain in left side due to enlarged… read more

posted 15 days ago
Continue with Facebook
Sign up with your email
Already a Member? Log in