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I Was Diagnosed With Chronic Eosinophilic Leukemia About 2 1/2 Years Ago. Been On Hydroxyurea Ever Since.

I Was Diagnosed With Chronic Eosinophilic Leukemia About 2 1/2 Years Ago. Been On Hydroxyurea Ever Since.

CEL must be rare. I have not seen where anyone else has it. Right now my worst reaction is extreme itching. I take two
prescriptions for itching daily. Plus, I use Sarna Lotion and CeraVe lotion daily. I am hopeing for more relief somehow.
Any suggestions that have been successful for others with CEL would be welcomed.

A MyLeukemiaTeam Member said:

I have never heard of that. But then there's a lot I haven't heard of. I hope you are doing well.

posted 28 days ago
A MyLeukemiaTeam Member said:

Yes

posted 28 days ago
A MyLeukemiaTeam Member said:

I also have a gene mutation that caused my CEL. Have you been given medication. I take Hydroxyurea - 1000 MG for 6 days and one day at 500 MG.
Itching has been a real problem at times. I am prescribed two different medications that help with the itching plus I use Sarna lotion and CereVe lotion. They also help but the itching is always there. I cannot stand to be in the humidity or hot sun because of the rash.
Thanks for responding.

posted 26 days ago
A MyLeukemiaTeam Member said:

I also have been diagnosed with chronic eosinophilic leukemia. My diagnosis in only three months old, so I don't know much about the disease. My PCP referred me to a hemotologist/oncologist because my eosinophils were rising far above normal. My first abnormally high reading was in May 2019. Tests this year were much higher. I don't know much about the disease yet, They did a bone marrow blood sample and also genetic work. I have a gene mutation that causes this disease. I don't even know how to spell hemotologist. I will go look it up right after this post.

posted 27 days ago
A MyLeukemiaTeam Member said:

Yes

posted 28 days ago
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