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I Don't Understand What The Numbers Mean

I Don't Understand What The Numbers Mean

Hello all and thank you for allowing me to join this group! I was diagnosed with CLL one year ago after my PCP noticed that my while cell count was a little high after being treated for a bad infection in my finger. She watched my bw for 3 months before sending me to a Hematologist, who gave me the diagnosis. This doctor told me that I don't need any treatment and I see her every 3 months for bw and a physical exam, checking my lymph nodes. My white cell count has gone… read more

A MyLeukemiaTeam Member said:

usually your wbc has to go much higher than 10.000 to start treatment since
it did double they could start treatment. Now make sure your not stressed or depressed that can make your numbers go up next any pain or imflation can make your numbers go up. And numbers can go backwards for no reason i went from 19.000 to 11.000 and they cannot tell me why nothing makes any sense with cll. I wish you all the luck i have had cll for 14 years and my numbers are better now than 14 years ago.You might have to see normal doc for other problems Ask the doctor if you have the slow kind of cll or the faster and if you have any markers. Then send me a message back i will know more by what you tell me and read my home page to see my complete story

edited, originally posted 7 months ago
A MyLeukemiaTeam Member said:

11 means 11000 i do believe

edited, originally posted 5 months ago
A MyLeukemiaTeam Member said:

Hi ! Praying that your numbers drop, I too have CLL and Non-Hodgkins Small B Cell Lymphoma. My last visit I was told my WBC (white blood count) had went up again. Mine seem to want to jump up and down this time (my second go around with these 2 types of cancer). They told me my RBC (red blood count and platelets were in normal range) so maybe I'm on the uphill climb. I do know that the first time around with this cancer back in 2017 I made a trip to the ER because I was hurting in my chest and thought it might be my heart, but it wasn't that, but I was told then my WBC was through the roof at 377,000.
As of now my WBC is at 17,200, visit before that was 14,300 and it had even gotten down to almost normal range at one point. But now I'm on this roller coaster ride...UGH ! From what my doctor has told me is normal range is 5.0 to 10.0 ( which means 5,000 to 10,000), I understand because it was confusing to me at first. Hang in there and stay positive !

posted 6 months ago
A MyLeukemiaTeam Member said:

Around 10,000 is the top end for normal WBC counts. Although I have been above normal for a couple years, my oncologist didn't start treatment until my WBC count got over 60 (or 60,000 to be exact). After a couple months on Imbruvica my WBC count climbed to 120 (120,000) but now that I've been on it since March 2020 my last numbers were below 70. I go Monday for my next blood test and hopeful my numbers have dropped more.

posted 7 months ago
A MyLeukemiaTeam Member said:

You'll want to check how they are reporting your WBC; in my case it is K/uL so my reported number is multiplied by 1000. Normal WBC is 4800 to 10800 or 4.8K to 10.8K. I always get a printed report of my blood results to avoid the confusion and misunderstanding - good luck

posted 7 months ago
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