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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

A MyLeukemiaTeam Member said:

I never really regained my stamina back. I get tired doing the simplest of things. I tire to help my wife out as much as I can, but she has taken on most of the work around the house. I'm 67 now, and realize so many people are much worse off than me. When I first started Chemo, I rediscovered God and put my faith in him. All things are possible through our lord and savior. I've been in remission now for 14 months and I praise the lord every day he continues to heal me. If I didn't get this disease, i wouldn't have found my way back to God. People may say this is a horrible disease, but without it I wouldn't have been saved. I know I've strayed from the topic of fatigue, but I just take it one day at a time. Exercise as much as possible, sleep when you need it...and DON'T deny yourself what your body is telling you. That's the best piece of advice I can give. ☺️

posted 15 days ago
A MyLeukemiaTeam Member said:

Three ideas that I keep. 1.CLL can't control who and what I am. Keep a tight grip on your identity separate from the disease. 2. Take one more step then rest. This is my mindset to not allowing the disease to control me. 3. Keep a positive attitude. When you are down (everyone gets this occasionally) count your blessings. This way you stop digging the hole you find yourself in.
Smile and enjoy today.

posted 21 days ago
A MyLeukemiaTeam Member said:

Fatigue is a symptom of treatment and the disease that seems not to go away. But it gets better. Suggest walking outside, as much as possible. Mornings are best for me. Short afternoon naps are great too. Stick to a schedule, but rest, when needed. It will get better.

posted 22 days ago
A MyLeukemiaTeam Member said:

Allow yourself the grace to nap if you can. The fatigue is gruesome some days…like moving in slow motion I end up taking two naps, late morning and mid afternoon. Give yourself permission, Napping is ok. On days I have a lot of energy I “get er done” as they say.

posted 22 days ago
A MyLeukemiaTeam Member said:

Hello friends, although I don't have critical scores, I began having fatigue issues at least 2 years back, probably longer. I believe it's not just part of my Leukemia, it's also combined with the overwhelming stressors in today's life. Sometimes it feels like I can't get out of bed. I do (eventually) get out of bed, and try to take a walk outside, around my neighborhood to energize myself. Getting out and breathing fresh air and enjoying all the wonderful gifts walking outside has to offer, does help. I've started taking a magnesium supplement called CALM in the evening. I can't say for sure that this helps, but I take in hopes that it will. Getting a good nights sleep, flew out the window years ago. I usually wake up in the middle of the night; bathroom run, and then I watch TV or hit my computer. These are huge NO, NO's, but I think it helps me to come to the point where I say, okay, put your sleeping mask on and go back to sleep. I usually get another 2 to 3 hours sleep. My total sleeping hours average 5-6 hours all told. And then, of course, I take a nap during the day. Usually a catnap, very short, but restful and refreshing. Last thing, when I get up and out of the house and walk, that truly seems to rev up my engine and provides me the prolonged energy that makes my day a good day

posted 22 days ago
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