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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Advice Do You Have For Others About Managing Fatigue?

MyLeukemiaTeam asked a question 💭
San Francisco, CA
May 5, 2022
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A MyLeukemiaTeam Member

Nutrition is my best way. I treat my body with extreme care. Nutrition, mental health and faith. I try to live the best life I can through the most natural means available. I grow my own food and eat mostly raw vegetables and herbs. I also grow all of my own herbs year round including most medicinal plants as well. I feel empowered and what I eat affects everything about my physical condition. Sugar is the enemy. Please find natural alternatives especially honey if you can. The medicinal properties are bountiful

July 17, 2022
A MyLeukemiaTeam Member

I never really regained my stamina back. I get tired doing the simplest of things. I tire to help my wife out as much as I can, but she has taken on most of the work around the house. I'm 67 now, and realize so many people are much worse off than me. When I first started Chemo, I rediscovered God and put my faith in him. All things are possible through our lord and savior. I've been in remission now for 14 months and I praise the lord every day he continues to heal me. If I didn't get this disease, i wouldn't have found my way back to God. People may say this is a horrible disease, but without it I wouldn't have been saved. I know I've strayed from the topic of fatigue, but I just take it one day at a time. Exercise as much as possible, sleep when you need it...and DON'T deny yourself what your body is telling you. That's the best piece of advice I can give. ☺️

May 12, 2022
A MyLeukemiaTeam Member

Exercise. Get to know your body. I had a bad habit of doing too much then crashing for several days; to give out to do any thing. So some low to moderate activity regularly and give yourself permission to have days of rest.

September 11, 2022
A MyLeukemiaTeam Member

The fatigue factor is different for everyone. I do what I can and then rest. I tend to take a lot more naps now a days though. I have other medical issues I deal with also, so like stenosis of the lower back and upper neck area. I also have neuropathy in my feet and legs which makes things difficult to walk more than 5 minutes at a time. I look at it this way, there are thousands of people that have things worse than me. So, I praise the lord for what he has given me every day of my life. I hope this has helped you.

June 26, 2022
A MyLeukemiaTeam Member

Three ideas that I keep. 1.CLL can't control who and what I am. Keep a tight grip on your identity separate from the disease. 2. Take one more step then rest. This is my mindset to not allowing the disease to control me. 3. Keep a positive attitude. When you are down (everyone gets this occasionally) count your blessings. This way you stop digging the hole you find yourself in.
Smile and enjoy today.

May 6, 2022

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