I’m Newly Diagnosed. When You Were Diagnosed Did The Provider Give You A Treatment Plan?
My chiropractor suggested seeing a naturopath. May do that once the levels are high enough to go out again.
We were not. We were told wait and see at Riverside Medical Clinic so we got a second opinion at UCI. The dr at UCI is a CLL specialist and I highly recommend trying to see a specialist. We came armed with questions and she answered every one of them, although the wait and see was still the treatment plan. Have a 6-month test tomorrow so we will “see” 😆. We saw a naturopath locally who did some tests and put him on a diet for his particular food sensitivities. If you want to chat about it, we are geographically close and I can give you some local references.
My medical team were quiet and did not provide any answers excess "don't worry and see you in two months?" I got my answers reading posting and resource section. I did not get any answers during my "wait and see" which did not make any sense to me? I requested medication 12/24 before any damage to my organs or glands. Medication did not cause any ill affects thought plenty of stage ill affects were listed? I think people in the best group may have been so unhealthy that they reported their "ill affects?" Medication can be expensive since my medication costs $15500 per month (there are organizations which provide grants so medication cost may be $0.) I did have a grant from Leukemia Society which had paid the co-payment $3400. Currently, my cost is $0 since insurance now pays 100%. I hope you can eat healthy and exercise to maintain your health. Finding answers can be good for both mental and physical health. When I read postings I feel good that others are accomplishing good things in their life and their posting can help others.
When newly diagnosed with leukemia, it's common for healthcare providers to give you a treatment plan. This plan often includes:
- Treatment plans
- Medical bills
- Lab results
- Insurance paperwork (home, health, life, or others)
- Power of attorney
- A living will or advance directive
- A will
- Other financial paperwork
We paid for a second opinion at city of hope and will change insurance in January so I can be followed there. The MD gave my diagnosis over the phone, telling me that I’m not a candidate for BMT, putting me on neupogen which isn’t helping the neutropenia much at all and is not seeing me for three months. Never done this before but made a complaint to member services.
Curious…for All Members Here Diagnosed With CLL….what Are Your WBC And Lymph Numbers? Mine Are 44,000 Wbc And 38,000 Absolute Lymphs.
I’m Newly Diagnosed With CLL/SLL. Has Anyone Been Prescribed Venclexta. What Are The Pros And Cons. Thank You.
Did You Inform Friends And Family When You Were Diagnosed With CLL?
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