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Has Anyone Had Any Bone Issues With CML, ALL, AML, CLL?

Has Anyone Had Any Bone Issues With CML, ALL, AML, CLL?

I ask because I had an MRI recently for my shoulder. I've got some tears in my rotator cuff muscles which was the basic reason for the MRI but they noted some lesions in the humerus. Given my history they said it was possibly leukemic infiltration or bone infarction. Not sure if that is a serious problem or not. I gather it could be part of degenerative bone disease and age related. Just curious as to whether anyone else has had this.

A MyLeukemiaTeam Member said:

I too had bone issues with my AML....had a MRI and found bone on bone in shoulder which I will need to have replaced at some point. After transplant and for almost a year and a half, I had terrible pain in my bones....mostly the arms and legs. It is getting better as time goes on. I was told this was a side effect of the transplant and medications. Found I had to really push through and keep going. Was very difficult. So, other than my shoulder, mine was not age related. Stay strong! Keep moving! Let me know if you have any more questions!!

posted almost 3 years ago
A MyLeukemiaTeam Member said:

Now that I've been on treatment for awhile, I can definitely say that the increased bone, joint and muscle stiffness and spasms are indeed a side-affect of the Venetoclax. I also experience excruciating Gout pain (which is a form of arthritis caused from high levels of uric acid).
Uric acid and phosphorus are released as a result of the Venetoclax destroying the Lymphnodes. It is a lot better now that my body is getting used to the meds, the largest Lymphnodes have been destroyed and I'm drinking between 8-10 glasses of water a day to help flush out the toxins. It does make a big difference.
People can have high uric acid levels even without being on treatment. Diabetics are more prone to higher uric acid and therefore gout.
Pain medication, stretching, and heat have also been quite beneficial.

posted about 1 year ago
A MyLeukemiaTeam Member said:

Yes both knees walking any distances is dicey and leg swelling water workouts help quite a bit

posted almost 3 years ago
A MyLeukemiaTeam Member said:

In remission from ALL (5 yrs since stem cell transplant)...no bone issues for me.
Sorry to hear about yours...😕

posted almost 3 years ago
A MyLeukemiaTeam Member said:

That is interesting. I have some chronic pain in my shoulder the last six months but never attributed it to any chemotherapy or symptom related to AML. I have mentioned it to my PCP and local oncologist but have not had an MRI.

posted almost 3 years ago
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