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Gleevec

Gleevec

How long do you need to take Gleevec. I have been taking it for twenty years. Have been in remission for at least 18 years. Still in remission.

A MyLeukemiaTeam Member said:

My face swells and also my eyes.

posted over 2 years ago
A MyLeukemiaTeam Member said:

As I understand it for the rest of your life. I saw my oncologist this week and we decided that my best option would be to try Gleevec again because the Tasigna stopped working, Sprycel and Bostifnib side-effects were to overwhelming and caused more issues than it was worth. I told her that the Gleevec was the only one that I would consider trying again - all I know is that the Gleevec gave me such bad gas that I told her that I didn't even want to be in the bathroom when I had a bowel movement it made my nose hair curl back it was so bad. I am sorry that your leukemia is returning but hopefully they will be able to get it under control again but you might have to change dosage or medication will have to be changed to one of the other ones, good luck and my prayers go out to you that it gets better again. Let us know what happens. Here is a big hug with love sent your way.

posted almost 2 years ago
A MyLeukemiaTeam Member said:

Have been taking gleevec for twenty years. Just found out last week my leukemia is returning. Doctor has doubled the meds.

posted almost 2 years ago
A MyLeukemiaTeam Member said:

When I was diagnosed with CML they told me that I would be on this medication for the rest of my life.

posted almost 2 years ago
A MyLeukemiaTeam Member said:

Were you in on the clinical trials, what kind dosage?

posted about 2 years ago
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