I was diagnosed with CLL at the age of 41. My hematologist says 1 in 6 million have CLL at my age. I’ve not met another in my age group with CLL and just curious.
I want to tell everyone about a possible therapy for chronic lymphocyte leukemia. My oncologist knew I was not interested in chemotherapy so he gave me a paper telling about Neem leaf extract inducing cell death by apoptosis in chronic lymphocytic leukemia cells. I ordered some from iherb.com and have been taking it since December 24th. The oncologist did not give me any instructions as to the dosage so I have been taking half of the eye dropper full every day 3 times a day. It is bitter so I mix it with about half of a small cup of water. I don't see him again until April but meanwhile I have noticed the lymph nodes on my neck that I can feel are starting to decrease. Your doctor probably won't approve this because of course they get a portion of the chemotherapy cost. My white blood cell count was around 22,000 and so those in the earlier stages of Leukemia might be interested in this.
I was diagnosed at 48 in 2002. My CLL is 13 Q and 11 Q. I’ve been treated with bendamustine and then Imbruvica and now I am on Venteclax. I am 66 now and enjoying life.
I was diagnosed when I was 48 and had the same problem. No one in my age group with CLL. It was really hard for me because at the time I had 2 small boys I am an old mom...lol I was 41 with my youngest so he was only 7 yrs old and my oldest was only 9 yrs old. I was diagnosed in 2006 and in watch n wait until 2008 when I had to start treatments.
I was 45 when I was diagnosed with stage IV CLL did 6 months of CFR in 2010 then started maintenance rituximab for 5 years I stopped in 2015 when I lost my insurance.