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Chronic Pain Due To Long Term Side Effects.

Chronic Pain Due To Long Term Side Effects.

I was dx with ALL in 2007. 3yrs of treatment. Was absolute hell. Lots of pain before, during and post treatment. My question is; Has anyone continued to experience moderate to severe joint, spinal and neuropathy pain that did not go away after tx and instead got worse as time went on. I'm 10yrs post treatment now and have had a lot of damage to my lower and thoracic spine. Both the vertebre, discs and the cord it's self. I had a Nevro hf 10 Spinal Cord Stimulator placed in 2017. It does help… read more

A MyLeukemiaTeam Member said:

Oh I feel for so bad for you Robert &Camliaann43 . There have been so much abuse the drs. Are afraid to order pain meds because theyll get in trouble. What's the answer? Prayer is all there is. I feel so bad for you both. I pray these drs will open their eyes to those who really need the pain pills. Have either of you tr>ed medical marijuana not smoke it but the salve, some that ive talked to says its a great thing and its proably cheaper than your pills. Been thinking about it myself

posted almost 2 years ago
A MyLeukemiaTeam Member said:

I don't know about for pain
I'm at the later stage of watching weight my doctor want me to start treatment for CLL, but wanted to wait until my CT scan and blood work. I started using cannabis edibles for the last 3 weeks. Tuesday I have a scan done and blood work everything came back better blood work was much better and lymph nodes were less swollen. I do not know if it was Cannabis. The doctor said today I don't need treatment yet. Just saying

posted about 1 year ago
A MyLeukemiaTeam Member said:

Robert. I take fentanyl and morphine for breakthrough pain
Unfortunately, like many ppl with chronic pain my meds have been tapered down to the point that I no longer get relief. Pain Management would rather make a pin cushion and guinea pig out of me with procedures and injections that don't work and cause more pain than to manage it with opioids. Makes me angry that instead of managing my pain, I get treated like an addict. It's a common attitude amongst the doctors here sadly.

posted about 2 years ago
A MyLeukemiaTeam Member said:

I have MM in my back bone marrow and crushed 2 vertebrates and had a stem cell transplant 7 years ago and still have chronic pain all my bones and feel bad in my head. I take oxy 1 ea morning, noon and 5 or 6 pm. It helps the pain a lot and just getting up moving and working and out door activities. Use something to control the pain.

posted about 2 years ago
A MyLeukemiaTeam Member said:

Thank you.

posted about 2 years ago
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