Does anyone have B Cell PH- ALL with an allogenic BMT as treatment? Did you relapse or acquire a secondary cancer? My mind is sometimes consumed by the thought of getting cancer again whether it be the same or a different one altogether. I guess I'm wondering about the odds of it happening.
I am 10 months post stem cell for AML and doing well. My last bone marrow aspiration was 2 weeks ago and fine, but I understand where you are coming from. I do worry about relapse or another cancer. However, I try to put it out of my mind and look for the rainbows. Keep positive and well. Thank you for sharing your concerns.
Wish I had the energy to exercise. I am 7 months post transplant and struggle to simple tasks
I had AML and an allogenic BMT transplant 11 months ago. I am in remission, but yes, the thought of relapse or another cancer always lurks in the back of my mind. I don’t dwell on it and am so grateful that I am here. I too try to keep positive and work very hard on eating right and keeping fit. I was a gym rat prior to getting sick and in great physical shape. Thanks to a sister who is a fitness instructor, I have been doing a livestrong program with her and am now back fitness wise to where I was before getting sick. Ron, I am impressed with your 5k right after treatment. I started working to get fit again while still in the hospital. I made it a point to walk the mile around the unit every day. After discharge, I worked up to walking 6 miles a day by the time I was through my first 100 days. My donor was my Other sister who is an iron woman and triathlete so I think her great cells helped.
We are in this all together. More and more adults are being diagnosed at an alarming rate with ALL. Became friends with many at Moffitt during treatments. It’s a long road. Stay positive and do not let it consume your life. As a runner, I kept training through my treatments and ran a 5 k a day after treatment. It was hard but we can’t give in. Just stay active.
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