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So I Have CLL My Doctor Says We Should Watch And Wait My WBC Is At 19 At What Point Should I Be Having Some Kind Of Treatment

So I Have CLL My Doctor Says We Should Watch And Wait My WBC Is At 19 At What Point Should I Be Having Some Kind Of Treatment

My CLL is in my marrow just wondering should I get a second opinion
Thanks
Victor

A MyLeukemiaTeam Member said:

I'm not a doctor and certainly not an oncologist but I did work in a medical lab for years doing hematology. The white cell count (WBC or leucocytes if you will) are the first indicators of things going south. Then specigically what are your lymphocytes (your little immune response guys of the white cell group), doing ....the absolute value in a percentage. Now, what are your red blood cells doing....are you becoming anemic because your white cells are crowding out your red cells. Also, what are your platelets doing, what is your ESR doing, what do your lymphocytes, or for those with AML what do your neutrophils look like under a microscope. These are all things our doctors have to consider before making their decisions. To get a bit more complicated, what genetic markers your disease has shown from the bone marrow and FISH tests. So what I'm trying to say, it's a bit more than just one number. Of course symptoms have to be taken into consideration because no two bodies behave the same. For example, I am frustrated my oncologist doesn't acknowledge my bone pain because the medical books don't recognize this for CLL.....yet I have terrible bone pain!!
Wordy I know, but that's my 5 cents worth. Have a blessed day everyone.

posted about 1 month ago
A MyLeukemiaTeam Member said:

19 is not a high number at all. I was at 110 before I began treatment. Everyone is different but I’m now in remission over a year with my CLL.

posted over 1 year ago
A MyLeukemiaTeam Member said:

Thanks Hun!

posted over 1 year ago
A MyLeukemiaTeam Member said:

I also have CLL and started out at 12 and had six years before it started doubling this year! Victor CLL is mostly slow growing so you are in good shape, it may be years before you have to be treated. I’ve had no symptoms except being tired! I would just enjoy yourself see your Doctor each appointment and live your life without worry!

posted over 1 year ago
A MyLeukemiaTeam Member said:

Mine is only WBC 11 my oncologist said 300,000 or more

posted over 1 year ago
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