I have just been diagnosed with CLL. I’m in early stage (0 stage according to my dr) and don’t have swollen glands (even tho they all ache) or spleen according to my scan and don’t need any treatment yet which is wonderful but yet my fatigue and pain are debilitating. My WBC is only 18,000. My diagnosis gave me reason as to why I was feeling all of that
My dr says to look for other reasons for my fatigue and symptoms. I have never experienced such fatigue in my entire life. No amount of… read more
Although you are at stage 0, which is great, you have been hit with a diagnosis which can take a toll on you emotionally. That is energy draining! Do you have any other things going on like arthritis or fibromyalgia? Lots of things can cause fatigue. Like you, I am at stage 0, and have probably had CLL since 2014 but didn't know it until 2020. I have slightly elevated lymphocytes which my PCP zeroed in on. No other symptoms except chronic fatigue which I have had for a long time. My labs are otherwise normal. What I do have is Crohn's Disease, fibromyalgia, glaucoma, low back pain from 5 spinal fusions, and sleep apnea. These all can cause fatigue! I sound like a mess but fortunately these chronic conditions won't kill me! They are annoying.
The weather right now is pretty debilitating for many people since it has been hot all summer. (I live in Phoenix.) Be sure to stay hydrated and eat fruits, veggies and lean meat for protein. Stretching exercise can help aches and pains!
Have they looked to see if you have anemia?
Anemia causes fatigue, muscle soreness, chest pains, rapid heart beat. Fix is infusions of iron, in my case, since I don't absorb iron from food. Check it out with a blood test looking for your iron levels.
Cll was the last of the gut punches I got in 2015. I was always tired, so I had a sleep study done. Major sleep apnea. Also, heart disease, heart failure, and Cll. Check into these things as possible causes.
I’m tied a lot more than ever before. Diagnosed with SLL, no treatment yet, blood work good. Just frustrated with being so tired.
It totally amazes me that doctors/oncologists refuse to state that it is the CLL causing the fatigue. GRRRRR.. Been dealing with the "blinders" of both oncologist and dr for 6 years! Yes, I have fired some of my oncologists because of this! Like you Skygirl, that was my one and main complaint 6 years ago when I went to my PCP for a routine physical. Anyways....Tammy..you're not alone and it is soooo frustrating every day. I have to force myself to get up after 12 hours...sometimes more than 12. Every day, I never know when I'm gonna hit the wall so to speak and have to lay down for a nap. Finally, I have accepted it & do the best I can with every day that I am given. Hugs and positive vibes!
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