A leukemia diagnosis can significantly impact quality of life. One of the key effects of the disease is feeling isolated and alone, according to the results of a recent survey.
To evaluate how a leukemia diagnosis affects daily activities, MyLeukemiaTeam recently surveyed 102 members about their experiences living with leukemia. Survey questions investigated leukemia’s impact on day-to-day life, as well as steps members take to manage the challenges that come with the diagnosis. Here are a few of the key takeaways from the survey:
“Quality of life” is a broad term that describes a range of topics. Different types of leukemia can affect people in a variety of ways, depending on one’s age, overall health, treatment options, and prognosis. MyLeukemiaTeam sought to find out exactly how leukemia affects quality of life for the members of this site.
The majority of members (72 percent) indicated that leukemia interferes with overall quality of life. This includes the following responses:
Despite the impact of leukemia, MyLeukemiaTeam members who took the survey are taking a number of steps to make it easier to live with the condition.
Living with a chronic condition like leukemia can sometimes mean you spend hours researching and still can’t find the information you’re seeking. According to the MyLeukemiaTeam survey, 74 percent of members indicated that they want to learn more about symptoms and what to expect, and 72 percent want to read articles about how to better manage leukemia.
MyLeukemiaTeam offers resources about the symptoms of leukemia and treatments for the condition. It’s also a good idea to find out more about mental health and leukemia, learn what you should eat when you have leukemia, and watch as an oncologist answers members’ top leukemia questions.
MyLeukemiaTeam is the social network for people living with leukemia. On MyLeukemiaTeam, more than 9,500 members come together to ask questions, give advice, and share their stories with others who understand life with leukemia.
What tips or questions do you have about living with leukemia? Share your thoughts in the comments below, or start a conversation on MyLeukemiaTeam.