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What Treatment Options Have Folks Had For CLL/SLL? And Side Effects?

What Treatment Options Have Folks Had For CLL/SLL? And Side Effects?

Hello Everyone and Happy Tuesday!! I met with Hematologist last week and confirmed my diagnosis of CLL/SLL. Treatment options - Imbruvica: 2 years or traditional chemo: 2 days/month for 6 months

A MyLeukemiaTeam Member said:

I was never started on Imbruvica. I started Calquence last March & now my wbc's are 11.8. My only side effect is mild bruises.

posted 7 days ago
A MyLeukemiaTeam Member said:

My PREVIOUS doctor had me set to start transfusions then do the chemo med. I was skepitcal, so I reached out to a couple of very-"edumicated" medical professionals for 2nd & 3rd opinions. I hooked-up with a very strong/caring team that encouraged the Acalibrutinib(Calquence). Other than the lack of energy I was used to having, it has really helped my blood to not continue to take significant direction that would not be helpful! I switched doctors and treatment two years ago.
FYI: It is not a bad idea to question health professional if you are not comfortable with the direction they are going. Before I agreed to Calquence I watched a lot of forums put-on from medical professionals to also help me in the direction to go. There are too-many screw-ups out there. IMHO

posted 9 days ago
A MyLeukemiaTeam Member said:

Kai
I had an allergic reaction to the imbruvica so I am now on calquence I have fatigue but pretty much so far it seems to be ok.

posted 12 days ago
A MyLeukemiaTeam Member said:

You all are pretty amazing. If imbruvica causes too.many side effects, try Calquence.

posted 12 days ago
A MyLeukemiaTeam Member said:

Kai
I believe you meant 2017 .
But it wasn’t approved for
CLL/SLL till the end of 2019.

posted 7 days ago
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