So sorry to hear that my husband was on the same treatment he just completed a stem cell transplant. He did not have those symptoms and never had a transfusion until.the transplant. Do they have another option for you? Have you looked into trials? I hope that you can find something. My suggestion is to look for a second opinion. We did that when the first doctor my husband saw wouldn't do the transplant - long story. I will pray you get the treatment you need.