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A MyLeukemiaTeam Member asked a question 💭
Pittsburgh, PA
September 14, 2024
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MyLeukemiaTeam

For people with chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL), medication is typically recommended when certain symptoms or test results indicate that the condition is progressing. These indicators include:

- Swelling in the lymph nodes or spleen
- Symptoms such as night sweats, fatigue, weight Show Full Answer

For people with chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL), medication is typically recommended when certain symptoms or test results indicate that the condition is progressing. These indicators include:

- Swelling in the lymph nodes or spleen
- Symptoms such as night sweats, fatigue, weight loss, and fever
- Blood test results showing:
- Lymphocyte count doubling within six months
- Anemia (low red blood cell count)
- Thrombocytopenia (low platelet count)
- Genetic biomarkers suggesting likely progression

Some individuals may be on a "watch and wait" approach for years before needing treatment.

September 14, 2024
A MyLeukemiaTeam Member

After a year of working with my doctor and seeing my WBC count increase with the doctor telling me to worry with a new higher number of WBC, I decided to take action. I did not want to wait until my health was affected by CLL? I was also worried about possible ill affects from the medication? I did not know the cost of medication was so high ($15500 per month.) I decided to improve my health and request medication. I was given a grant from Leukemia Society to cover my co-pay ($3400 per month.) My WBC count with medication has been about 8000. My co-pay was given for 2 month and now my insurance covers 100% with zero cost to me. I think the ill affects may be reported from people who may have been very ill who were in the test group? I hope other team members can help with their choice of deciding how to control their illness? I also have been effective with eating healthier and exercising to help my body to be ready for the next issue with old age and CLL?

September 14, 2024

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