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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Redmond, WA
December 23, 2024
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A MyLeukemiaTeam Member

Carol... sad to say, when my CLL had got bad enough where I was going and had started treatment, I was getting canker sores and cold sores much more often than I had before. I can remember a couple times I'd have multipule canker sores.... one big one and one or two small ones. It was a miserable time of my cll journey that I had forgotten about.
Also, as several other cll patients have attested to, is problems with tooth decay. I've never had the strongest teeth, thanksto my mother's genitics, but from the year (2021) before starting treatments to April of 2024, I had only two remaining teeth that were considered 'keepable'. But like the oral surgeon said, considering your cll and oral history, it's only a matter of time.... might as well do the whole shebang. So since then, and having gone into remission in June... no more sores and no more toothaches.

I actually have two tube's of Oralgel and a tube of Herpecin in my nightstand that I'll probably never use... thankfully.

December 23, 2024
A MyLeukemiaTeam Member

I use a mouthwash called Healthy Gums ..works well but now can’t find it in stores that usually carry it. Stay away from any mouthwash with alcohol in it. Ask your dentist for some recommendations.

December 23, 2024
A MyLeukemiaTeam Member

I think good health with a person's mouth begins with brushing your teeth or mouth. Taking vitamins and supplements can help a person's general health

December 23, 2024
A MyLeukemiaTeam Member

I have never encountered mouth sores

December 24, 2024
MyLeukemiaTeam

Yes, mouth sores can be a symptom of chronic lymphocytic leukemia (CLL). They may occur due to infections caused by low levels of healthy white blood cells, which weaken the immune system. Additionally, mouth sores can also result from certain treatments for CLL. If you experience mouth sores, it's important to discuss them Show Full Answer

Yes, mouth sores can be a symptom of chronic lymphocytic leukemia (CLL). They may occur due to infections caused by low levels of healthy white blood cells, which weaken the immune system. Additionally, mouth sores can also result from certain treatments for CLL. If you experience mouth sores, it's important to discuss them with your doctor.

December 23, 2024

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