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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 14, 2025
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MyLeukemiaTeam

Your specialist's approach aligns with standard CLL management practices. For slow-growing (indolent) CLL, many healthcare providers recommend a "watch and wait" approach when there are no symptoms. This strategy allows you to avoid unnecessary treatment side effects while carefully monitoring your condition through regular Show Full Answer

Your specialist's approach aligns with standard CLL management practices. For slow-growing (indolent) CLL, many healthcare providers recommend a "watch and wait" approach when there are no symptoms. This strategy allows you to avoid unnecessary treatment side effects while carefully monitoring your condition through regular check-ups and blood tests.

During this monitoring period, your doctor will track important changes like lymph node size, blood cell counts, and spleen size to determine the optimal time to begin treatment. Starting treatment too early when it's not medically necessary could potentially lead to treatment resistance later when you really need it. Additionally, early treatment exposure could cause side effects that impact your quality of life without providing meaningful benefits. The key is maintaining regular follow-up appointments so your healthcare team can quickly identify when treatment becomes necessary.

March 14, 2025
A MyLeukemiaTeam Member

That is almost Word for Word exactly what my oncologist/hematologist says he treats symptoms, not numbers. He stated he has had a patient with numbers approaching 200,000. That he never had to treat.

March 17, 2025
A MyLeukemiaTeam Member

Thank you all! Glad we have each other to ask questions and maybe even complain a bit. 😊

April 10, 2025
A MyLeukemiaTeam Member

My hematologist hasn’t treated me at all as I’ve been stage 0 for several years. I agree with this approach since it appears that my body is managing the CLL well. If/when there’s a change and I’m at the point of treatment, I will not have developed an intolerance to a treatments effectiveness.

March 14, 2025
A MyLeukemiaTeam Member

The bad white blood cells (WBC) seem to attack both good and bad cells and organs. This damage can lead to other forms of cancer. The experiment with a person's health without tell a person of their odds of suffering or dieting from watch and wait never happens since doctors do not discuss possible "ill affects" which can occur during the delay in medicating the bad cells. If the cancer mutates then a new medication is required and there are many new medications which attack the cancer in a totally different mens than the previous medication. There is no worry about a "one shot" treatment since the main goal of treatment is "control" the illness versus let the cancer run its course. When a doctor is looking for lumps and tumors it may be too late. I think doctor do not explain enough so that each person knows what they can choose for a healthy and happy life. Celebrating Long Life (CLL)

April 14, 2025

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