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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Sacramento, CA
March 23, 2025
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A MyLeukemiaTeam Member

Have always been intrigued on how we as people are so alike, yet different in our unique ways. We're like various bottles of hot sauce, some are hot and some are mild. I would be a hot sauce pleasantly mellow with hints of spicy fruityness.

March 29, 2025
A MyLeukemiaTeam Member

I can see that with you Deb. A nice mild sauce, but then all of a sudden, this hot sauce kicking butt... making a person wondeing.... "where the heck did come from?", while you're looking at this tiny cute little bottle with marigolds on the table.

This going to sound silly. But I don't have fatigue as much as I used too. So my regular sleeping routine is all messed up. I went to bed when I usually do, and now it 12:15 in the morning and I'm wide awake, wanting to make some cabbage soup. I don't take morning and afternoon naps like I used too, and actually miss taking them. And the bad part is, since I'm not taking naps I'm cooking and eating instead.

My latest project made from wood set out for garbage. Probably put a planter on it. Notice the Chives have come up strong.

March 31, 2025
A MyLeukemiaTeam Member

Hi everyone. Yes this site has much info. I also October 1st 2024 found out I had CLL.
Notice different doctors use different numbers on blood counts and tomorrow I will ask after my blood work. My levels am told are normal but experiencing much pains in stomach (thought high white cells?), pains on lower spine steady for two weeks. Feeling drained mostly push myself to do everything.
But I do a lot could only sit still for a while.
Have faith and enjoy each day!🥰

March 26, 2025
A MyLeukemiaTeam Member

My doctor said he has seen 400,000 without symptoms.

March 26, 2025
A MyLeukemiaTeam Member

Hi Louise and Terry. Have either of you seen a dermatologist? If no, you may want to consider seeing one to confirm what it is you actually have(could be an allergy of some kind) I sometimes get what is called Petachaie that is related to CLL, but have not had any rashes that are itchy, etc. Claritin is ok for the short term but can work against your immune system over time. Best to get to the root of the problem vs. "band aiding" the problem..

December 24, 2025

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A MyLeukemiaTeam Member asked a question 💭
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