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A MyLeukemiaTeam Member asked a question 💭
Madison, WI

My mom has been in the hospital for over two weeks and I feel like there is no movement forward. Her platelets are stable but she has a fever and a rash and throat sores. We want to get her to the clinic in Madison Wi and out of Milwaukee. How can I get her here?

July 15, 2025
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MyLeukemiaTeam

Here are key steps to help advocate for your mom's care:

1. Keep a running list of questions and concerns on paper or your phone about her symptoms, treatment progress, and transfer request
2. Bring a trusted family member to appointments to help advocate, ensure questions are addressed, and record important information
3 Show Full Answer

Here are key steps to help advocate for your mom's care:

1. Keep a running list of questions and concerns on paper or your phone about her symptoms, treatment progress, and transfer request
2. Bring a trusted family member to appointments to help advocate, ensure questions are addressed, and record important information
3. Be completely honest and direct with the oncology team about your desire to transfer facilities For the transfer request specifically:

1. Ask to speak directly with her current oncologist about your concerns and desire to transfer
2. Request a patient liaison or nurse navigator from the hospital - they can help coordinate between facilities
3. Have her medical records and blood test results ready to share with the new facility
4. Check with your insurance provider about coverage at the new location

Remember that as a family member, you have every right to advocate for what you believe is best for your mom's care. Stay persistent but professional in your communications.

July 15, 2025
A MyLeukemiaTeam Member

Hi Serena. Absolutely follow the input & recommendations from the above response. Also, if the state of WI has (which most states do) healthcare power of attorney forms then, if you & your Mom haven’t done one, then that may help as well. Gives you more leverage & power to advocate & represent your Mom.

July 16, 2025

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