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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

The question was how long has anyone been diagnosed with CLL before requiring hypogammaglobulin infusions

A MyLeukemiaTeam Member asked a question 💭
Augusta, WV
August 15, 2025
 · 
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A MyLeukemiaTeam Member

That’s great news. It seems I will be on IVIG for the rest of my life. No change in WBC and IgG and IGA are still very low .

September 2, 2025
A MyLeukemiaTeam Member

I do not, cause I'm not on medication

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August 15, 2025
MyLeukemiaTeam

The timing for starting hypogammaglobulin infusions varies for each person with CLL. The need for treatment is based on several factors that your doctor will monitor during follow-up visits, including:

• Blood cell count changes
• Symptom progression
• Overall health status
• Genetic markers of your specific CLL

Your Show Full Answer

The timing for starting hypogammaglobulin infusions varies for each person with CLL. The need for treatment is based on several factors that your doctor will monitor during follow-up visits, including:

• Blood cell count changes
• Symptom progression
• Overall health status
• Genetic markers of your specific CLL

Your doctor will regularly monitor your blood work and symptoms to determine when any treatments, including infusions, should begin. Some patients may be on "watch and wait" for years before requiring treatment. One MyLeukemiaTeam member shared being on watch and wait for nine years before needing treatment. The timeline varies significantly between individuals - another member reported starting treatment when their white blood cell count reached 190 and they developed an enlarged spleen. Always work closely with your healthcare team to determine the right time to begin any treatments.

August 15, 2025
A MyLeukemiaTeam Member

Diagnosed in 2008 with CLL and COPD. Pulmonologist suggested IvIg 2023 and oncologist agreed. Still doing it monthly. WBC was off and we tried Calquence. Had to stop due to side effects but it did lower the WBC. No side effects from the Ivig infusions.

September 2, 2025

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