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Hello, I don't often see CMML mentioned, probably because it's a very rare form of chronic leukemia.
For those patients and their families though, it's very disheartening to find out that, not only is there very little hope with existing treatments (especially when you're not eligible to bone marrow transplant), but also that so few people talk about it, and so few people seem to work on trying to find more potential treatments. Hope is nowhere to be found, it seems.
I think 50 years ago there was no medication available to help control any blood cancer? Today many choices are available to control different leukemias. There are many web sites that provide helpful information (bloodcancerunited.org, health unlocked.com) My blood doctor never told me anything except "don't worry?" In one year I discovered the answers to my questions and today I am happy and heathy. I also discovered that my health is improved by eating healthy and exercising which helps me combat any ill affects in the future? I hope future is both happy and healthy. Celebrating Long Life (CLL)
It's understandable to feel discouraged about having a rare form of leukemia. You're right that CMML is quite rare - with only about 1,100 new diagnoses each year in the United States. While this rarity can make finding information and support more challenging, please know that you're not alone in this journey.
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