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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Canada, KY

I have CLL . I was imbruvica for over 1 years. After Afid event was taken off it abruptly. After 4 days I developed a blisters rash . I also have an autoimmune disease. The discontinuing of the drugs put in a flare. I am experiencing weakness, fatigue and no energy as well as vasculitis rash.
Any information will be appreciated. Pat 504

April 6
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MyLeukemiaTeam

What reactions have people experienced after abruptly stopping Imbruvica?

Stopping Imbruvica suddenly can be concerning, especially after taking it for over a year. While the available information doesn't specifically detail reactions from abruptly stopping Imbruvica, your symptoms of weakness, fatigue, and rash are worth Show Full Answer

What reactions have people experienced after abruptly stopping Imbruvica?

Stopping Imbruvica suddenly can be concerning, especially after taking it for over a year. While the available information doesn't specifically detail reactions from abruptly stopping Imbruvica, your symptoms of weakness, fatigue, and rash are worth discussing with your doctor right away.

The blistering rash and vasculitis you're experiencing could be related to several factors:

* Your CLL becoming more active after stopping treatment
* A flare of your autoimmune condition
* A delayed reaction to the medication itself

Imbruvica is known to cause skin rashes as a side effect while taking it. However, developing new symptoms after stopping requires medical attention, especially with your autoimmune condition involved. It's important to contact your healthcare team immediately about these symptoms. Stopping CLL treatment can allow the disease to become active again, which might explain your fatigue and weakness. Your doctor may need to restart treatment or try a different approach to manage both your CLL and autoimmune symptoms.

A MyLeukemiaTeam member might have similar experiences to share, but your medical team needs to evaluate whether this is a treatment reaction, disease progression, or an autoimmune flare requiring immediate intervention.

April 6
A MyLeukemiaTeam Member

This is very strange to have an ill affect when NOT taking the drug? This drug is not so safe......

April 6

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A MyLeukemiaTeam Member asked a question 💭
Canada, KY