I sent a message in the portal to him before I posted here. Still waiting. Just looking for other experiences/input
June 8
You need to bring up these concerns with your doctor or oncologist. We can support you but they are the experts you need to listen too.
June 8
Stomach pain and nausea are definitely worth paying attention to, especially just a month into a CML diagnosis. Both can be related to the spleen being affected, but there are a couple of things that could be going on.
An enlarged spleen (splenomegaly) is common with CML. As leukemia cells build up in the spleen, it can Show Full Answer
Stomach pain and nausea are definitely worth paying attention to, especially just a month into a CML diagnosis. Both can be related to the spleen being affected, but there are a couple of things that could be going on.
An enlarged spleen (splenomegaly) is common with CML. As leukemia cells build up in the spleen, it can grow and press against the stomach, causing:
- Pain or fullness in the upper left abdomen
- Feeling full quickly when eating
- Pain that sometimes radiates to the left shoulder
- Bloating
One MyLeukemiaTeam member shared, "My spleen was massive — my oncologist said it was lying on top of my stomach." Nausea can also be a side effect of CML treatments like tyrosine kinase inhibitors (TKIs), which are commonly prescribed early on. So it's possible both the spleen and medication are playing a role.
The most important step right now is to contact the care team as soon as possible and describe these symptoms. They can examine the spleen and review any medications to figure out exactly what's causing the discomfort. Don't wait on this one!
June 8
Yeah, I haven't even started my TKI yet
June 8 (edited)