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I was diagnosed with high moderate MDS on Friday. My blood counts are 2 for white cells, 2.3 for red, 8 for total blood, and platelets still in normal range, but on the lower end. I feel pretty crappy. I have been as low as a 6.2 on the total blood thingy and have three transfusions over the last 2 1/2 months.

3 days ago
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A MyLeukemiaTeam Member

It was a misspelling with "profit" I meant PROCRIT. Any info?

3 days ago
MyLeukemiaTeam

First off, a fresh diagnosis plus feeling rough physically is a lot to carry — so it makes complete sense that you're looking for information and support right now.

Vidaza (azacitidine) is a chemotherapy medication commonly used to treat MDS. It works by targeting abnormal blood cells and can help in several ways:

- Show Full Answer

First off, a fresh diagnosis plus feeling rough physically is a lot to carry — so it makes complete sense that you're looking for information and support right now.

Vidaza (azacitidine) is a chemotherapy medication commonly used to treat MDS. It works by targeting abnormal blood cells and can help in several ways:

- Improving symptoms
- Boosting quality of life
- Helping prevent MDS from progressing
- Potentially extending how long the treatment keeps things under control

You mentioned "Profit" — this might be referring to a clinical trial or a specific treatment program. It's worth confirming the exact name with your care team so you have the full picture. Given your blood counts and the three transfusions over the past couple of months, your care team is clearly keeping a close eye on things. With intermediate-high risk MDS, a more active treatment approach like Vidaza is typically recommended.

It's worth asking your doctor these key questions:

- What is my specific risk score, and which scoring system was used?
- Have my cancer cells been tested for genetic changes?
- What side effects should I watch for with Vidaza?
- How will we know if the treatment is working?

Some cases of MDS can eventually become resistant to treatment, so staying in close communication with your care team about how you're responding is really important.

3 days ago

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