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Leukemia

Questions + Answers

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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

posted 5 months ago
A MyLeukemiaTeam Member said:

I also use the marijuana tincture. I can usually sleep well for about 6 hours. I only wish it did not take two hours to take effect

posted 3 days ago

Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

I am in watch and wait mode for CLL after being diagnosed a couple of years ago. Pain and fatigue are what originally sent me to the doctor before diagnosis. Has anyone else experienced worsening pain and extreme fatigue before treatment?

edited, originally posted over 3 years ago
A MyLeukemiaTeam Member said:

Yes I have lymph nodes that I notice from time to time. I never connected it to colds etc. but will be more aware when they become enlarged.

posted 6 days ago

What Are Your Top Tips For Managing Leukemia In The Summer Heat?

What Are Your Top Tips For Managing Leukemia In The Summer Heat?

posted 3 months ago
A MyLeukemiaTeam Member said:

I found that I suffer some excruciating leg cramps during nighttime sleep after having sweated profusely doing yard work during the day. After a little research, I found a product, Laird's Superfood -… read more

posted 16 days ago

Is There Anyone Who Was Diagnosed With CLL While In Their 40’s?

Is There Anyone Who Was Diagnosed With CLL While In Their 40’s?

I was diagnosed with CLL at the age of 41. My hematologist says 1 in 6 million have CLL at my age. I’ve not met another in my age group with CLL and just curious.

posted almost 3 years ago
A MyLeukemiaTeam Member said:

i have heard good things about venclexta

posted 7 months ago

Acid Reflux

Acid Reflux

Anyone experience acid reflux while taking leukemia meds? Dr said I cannot take any of the meds available to treat it because they decrease the acid needed to absorb the leukemia drug. anyone have any treatment that helps?

posted almost 3 years ago
A MyLeukemiaTeam Member said:

Guess it depends on what you are taking.

posted 24 days ago

Has Anyone Else Had This?

Has Anyone Else Had This?

I woke up with this above my hip a couple of days ago. It’s not itchy or anything, but I have never had it before. I don’t go back to the doctor until until next month.

posted 19 days ago
A MyLeukemiaTeam Member said:

Please keep us updated, hun! 🙏🏻

posted 8 days ago

Covid Vaccine

Covid Vaccine

I have cll and am thinking about taking the covid vaccine but I'm concerned about it because it hasn't been tested on people with lukeima. Should I still take it?

posted over 1 year ago
A MyLeukemiaTeam Member said:

I took it.and the booster. I did fine so far. No covid but I'm very careful.🙏

posted 7 months ago

Who Here Has Cll? What Stage? How Long?

Who Here Has Cll? What Stage? How Long?

Hi I’m Stage 1 of cll and wondering what’s next?

edited, originally posted almost 2 years ago
A MyLeukemiaTeam Member said:

Hi. I’m 67 and was diagnosed July 2021 with CLL stage 2. Pretty sure it was brewing for at least 3 years prior to that. Oncologist said that she would check for mutations or IGHV status just prior to… read more

posted 23 days ago

Sprycel

Sprycel

I would like to know if anyone with CML has had trouble with their eyes. I am on sprycel. Before I was n gleevac.

posted about 3 years ago
A MyLeukemiaTeam Member said:

Yes three months after my annual eye exam, which was fine with no change in prescription that I’ve had for 15 years, I noticed blurring. Made An appt for fundoscopy. It’s showed after 3 months on Spryread more

posted 10 months ago

Has Anyone Had Any Bone Issues With CML, ALL, AML, CLL?

Has Anyone Had Any Bone Issues With CML, ALL, AML, CLL?

I ask because I had an MRI recently for my shoulder. I've got some tears in my rotator cuff muscles which was the basic reason for the MRI but they noted some lesions in the humerus. Given my history they said it was possibly leukemic infiltration or bone infarction. Not sure if that is a serious problem or not. I gather it could be part of degenerative bone disease and age related. Just curious as to whether anyone else has had this.

posted about 3 years ago
A MyLeukemiaTeam Member said:

Angela, I agree too but luckily, I will be transferring from the Oncology team to Transplant team shortly and will be able to better control my symptoms. I had to endure two induction treatments and… read more

posted 2 months ago
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