Leukemia
Questions + Answers
Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?
Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?
I am in watch and wait mode for CLL after being diagnosed a couple of years ago. Pain and fatigue are what originally sent me to the doctor before diagnosis. Has anyone else experienced worsening pain and extreme fatigue before treatment?
Is There Anyone Who Was Diagnosed With CLL While In Their 40’s?
Is There Anyone Who Was Diagnosed With CLL While In Their 40’s?
I was diagnosed with CLL at the age of 41. My hematologist says 1 in 6 million have CLL at my age. I’ve not met another in my age group with CLL and just curious.
Covid Vaccine
Covid Vaccine
I have cll and am thinking about taking the covid vaccine but I'm concerned about it because it hasn't been tested on people with lukeima. Should I still take it?
Sprycel
Sprycel
I would like to know if anyone with CML has had trouble with their eyes. I am on sprycel. Before I was n gleevac.
Acid Reflux
Acid Reflux
Anyone experience acid reflux while taking leukemia meds? Dr said I cannot take any of the meds available to treat it because they decrease the acid needed to absorb the leukemia drug. anyone have any treatment that helps?
Covid Vaccinations
Covid Vaccinations
Hi My Leukemia family. Has anyone on our team had a covid vaccine yet? I haven't got the nerve up to take it yet. I'm to afraid of the side effects. I'm afraid it would interfere with my treatment. It's been 13 years since my CML diagnosis. I've been doing very well so far. Stay Safe 😷 Everyone please stay safe 🙌
Donor Cells
Donor Cells
I am interested to learn from those who have had a stem cell transplant for AML or any leukemia for that matter. I would like to ask what you percent of donor cells did you have after transplant? How long since your transplant. Anyone who transplant has not cured? Thanks for any information.
I Don't Understand What The Numbers Mean
I Don't Understand What The Numbers Mean
Hello all and thank you for allowing me to join this group! I was diagnosed with CLL one year ago after my PCP noticed that my while cell count was a little high after being treated for a bad infection in my finger. She watched my bw for 3 months before sending me to a Hematologist, who gave me the diagnosis. This doctor told me that I don't need any treatment and I see her every 3 months for bw and a physical exam, checking my lymph nodes. My white cell count has gone from 11 up to 27 in a… read more
Breathing
Breathing
Does anyone have difficulty with shortness of breath
WBC
WBC
I was diagnosed with CLL several years ago. I have regular appointments with my oncologist. I have been in the "wait and see" stage since diagnosis. My most recent visit, which was after a year, my WBC went from 23.4 to 56.6. My Absolute Lymphocyte Count was 44.75 K/uL. My oncologist mentioned maybe starting treatment but was not definite. My next appointment will be in 3 months. My question is how high does the WBC get before aggressive treatment is started.
Sometimes the reason for starting treatment isn’t always your WBC. Mine was the size of my nodes
