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Leukemia

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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

I am in watch and wait mode for CLL after being diagnosed a couple of years ago. Pain and fatigue are what originally sent me to the doctor before diagnosis. Has anyone else experienced worsening pain and extreme fatigue before treatment?

A MyLeukemiaTeam Member said:

Who else has sinus problems with imbruvica?

posted 7 months ago

Is There Anyone Who Was Diagnosed With CLL While In Their 40’s?

Is There Anyone Who Was Diagnosed With CLL While In Their 40’s?

I was diagnosed with CLL at the age of 41. My hematologist says 1 in 6 million have CLL at my age. I’ve not met another in my age group with CLL and just curious.

A MyLeukemiaTeam Member said:

I was 45 when i was diagnosed with CLL/SLL. I'm 46 now so this is relatively new to me though my primary Dr looked back at a lot of scans and blood work… read more

posted 4 months ago

Acid Reflux

Acid Reflux

Anyone experience acid reflux while taking leukemia meds? Dr said I cannot take any of the meds available to treat it because they decrease the acid needed to absorb the leukemia drug. anyone have any treatment that helps?

A MyLeukemiaTeam Member said:

I was told as long as you waited two hours after taking the leukemia medication you should be okay, it is just you can't take it along with the leukemia… read more

posted about 2 months ago

Breathing

Breathing

Does anyone have difficulty with shortness of breath

A MyLeukemiaTeam Member said:

Thank you all for your replies. Sometimes I don’t think the doctors listen much when your in ww

posted 9 months ago

Sprycel

Sprycel

I would like to know if anyone with CML has had trouble with their eyes. I am on sprycel. Before I was n gleevac.

A MyLeukemiaTeam Member said:

I got puffy eye lids as well. My glasses I think hide them a little. I was told to put a cold compress on them, try it doesn't do thing for me. I'm on read more

posted 7 months ago

Bosulif

Bosulif

Is this a Chemo drug and can i lose my hair from this?

A MyLeukemiaTeam Member said:

I have CML also and on Sprycel 100mg. And did not loose my hair.

posted 5 days ago

CLL Zap 70 +

CLL Zap 70 +

When I was diagnosed with CLL my “fish” panel showed I am Zap 70 positive.
My oncologist didn’t really say much about it. I’m on watch and wait with no symptoms other than wbc and lymphocytes are high.
Anyone else have this on their bloodwork?

A MyLeukemiaTeam Member said:

Will the neem leaf extract affect some meds? My husband is taking Lipitor, losartin, and metropolol. would a pharmacist know?

posted 4 months ago

Do You Have Night Sweats With CLL

Do You Have Night Sweats With CLL

A MyLeukemiaTeam Member said:

I had to sleep with multiple beach towels and a blanket under me because of night sweats. Not every night. Mostly the nights without the towels.… read more

posted 6 months ago

Has Anyone Had Any Bone Issues With CML, ALL, AML, CLL?

Has Anyone Had Any Bone Issues With CML, ALL, AML, CLL?

I ask because I had an MRI recently for my shoulder. I've got some tears in my rotator cuff muscles which was the basic reason for the MRI but they noted some lesions in the humerus. Given my history they said it was possibly leukemic infiltration or bone infarction. Not sure if that is a serious problem or not. I gather it could be part of degenerative bone disease and age related. Just curious as to whether anyone else has had this.

A MyLeukemiaTeam Member said:

I had ALL. I got avascular necrosis in both hips and one shoulder. But that was due to the treatments and not the cancer itself.

posted 2 months ago
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