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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Medical marijuana"

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Cml, What Covers Most Costs : Medicare With Medigap And Part D OrMedicare Advantage

Cml, What Covers Most Costs : Medicare With Medigap And Part D OrMedicare Advantage

cml: what covers most costs :(medicare, medigap, part d program cost about $500 a month) or Medicare advantage program which does not require monthly fees but fees for every service with part d?

A MyLeukemiaTeam Member said:

I am allergic to Benadryl as well, they give me Zyrtec instead

posted over 1 year ago

What Are Some Of Your Side Effects From Chemo

What Are Some Of Your Side Effects From Chemo

I have had a lot of side effects and other medical problems since my diagnosis And bring on multiple types of chemo how do u handle it

A MyLeukemiaTeam Member said:

Fire the caregiver WITH explanations to the company she came from or the licensing facility. That’s theft and does not belong in your home! Locking caps are available for pain meds.

posted 15 days ago

Chronic Pain Due To Long Term Side Effects.

Chronic Pain Due To Long Term Side Effects.

I was dx with ALL in 2007. 3yrs of treatment. Was absolute hell. Lots of pain before, during and post treatment. My question is; Has anyone continued to experience moderate to severe joint, spinal and neuropathy pain that did not go away after tx and instead got worse as time went on. I'm 10yrs post treatment now and have had a lot of damage to my lower and thoracic spine. Both the vertebre, discs and the cord it's self. I had a Nevro hf 10 Spinal Cord Stimulator placed in 2017. It does help… read more

A MyLeukemiaTeam Member said:

I don't know about for pain
I'm at the later stage of watching weight my doctor want me to start treatment for CLL, but wanted to wait until my CT scan and blood work. I started using cannabis edibles… read more

posted 12 months ago

Has Anyone Been On Venclexta And Not Have Any Issues With It?

Has Anyone Been On Venclexta And Not Have Any Issues With It?

A MyLeukemiaTeam Member said:

I am taking Venclaxcia but my platelets are at 5-6k I am on IvIG that usually bumps my platelets up real quick but this time they not coming up like they use too

posted 21 days ago

So I Have CLL My Doctor Says We Should Watch And Wait My WBC Is At 19 At What Point Should I Be Having Some Kind Of Treatment

So I Have CLL My Doctor Says We Should Watch And Wait My WBC Is At 19 At What Point Should I Be Having Some Kind Of Treatment

My CLL is in my marrow just wondering should I get a second opinion
Thanks
Victor

A MyLeukemiaTeam Member said:

I'm not a doctor and certainly not an oncologist but I did work in a medical lab for years doing hematology. The white cell count (WBC or leucocytes if you will) are the first indicators of things… read more

posted 1 day ago

Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

I am in watch and wait mode for CLL after being diagnosed a couple of years ago. Pain and fatigue are what originally sent me to the doctor before diagnosis. Has anyone else experienced worsening pain and extreme fatigue before treatment?

A MyLeukemiaTeam Member said:

I was just diagnosed with stage 1 of CLL, I have a lot of fatigue. I agree with you. Why get treatment if no cure.

posted 5 days ago

Anyone Else Use The VA For Treatment?

Anyone Else Use The VA For Treatment?

The VA hosp has run out of Gleevec,.... so my Dr didn't refill my rx! He said it won't effect my long term prognosis! Has anyone else missed a week or so of pills?

A MyLeukemiaTeam Member said:

I started showing side effects with Bosutinib when VA Doctor told me to double dose to 2 100mg tablets a day June of 2020. I previously had taken Sprycel when I was first diagnosed 4 years ago. In… read more

posted 9 months ago

Clinical Trials

Clinical Trials

Hi everyone. Being a bit new at all this stuff, I was wondering what type of general situation makes one eligible for a clinical trial. I'm guessing from what I've read you have to be sick enough so they have something to test, correct?

A MyLeukemiaTeam Member said:

Hi Bob .. I am pretty sure you need to meet the
qualifications for the trial. Mine was that way
Each trial is different. For instance they may hold
a trial on "dosage" of a specific BTK inhibitor… read more

posted 11 months ago

Imbruvica

Imbruvica

I'm on medicare and AARP United Health care and RX plan but they don't cover very much of the cost. I have a grant but it will soon be gone. Any helpful suggestions for affording Imbruvica?

A MyLeukemiaTeam Member said:

Call the manufacturer of the drug, a lot of the times they will give a year supply at no cost

posted over 1 year ago