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I was dx with ALL in 2007. 3yrs of treatment. Was absolute hell. Lots of pain before, during and post treatment. My question is; Has anyone continued to experience moderate to severe joint, spinal and neuropathy pain that did not go away after tx and instead got worse as time went on. I'm 10yrs post treatment now and have had a lot of damage to my lower and thoracic spine. Both the vertebre, discs and the cord it's self. I had a Nevro hf 10 Spinal Cord Stimulator placed in 2017. It does help… read more
I don't know about for pain
I'm at the later stage of watching weight my doctor want me to start treatment for CLL, but wanted to wait until my CT scan and blood work. I started using cannabis edibles… read more
I'm not a doctor and certainly not an oncologist but I did work in a medical lab for years doing hematology. The white cell count (WBC or leucocytes if you will) are the first indicators of things… read more
I am in watch and wait mode for CLL after being diagnosed a couple of years ago. Pain and fatigue are what originally sent me to the doctor before diagnosis. Has anyone else experienced worsening pain and extreme fatigue before treatment?
I started showing side effects with Bosutinib when VA Doctor told me to double dose to 2 100mg tablets a day June of 2020. I previously had taken Sprycel when I was first diagnosed 4 years ago. In… read more
Hi everyone. Being a bit new at all this stuff, I was wondering what type of general situation makes one eligible for a clinical trial. I'm guessing from what I've read you have to be sick enough so they have something to test, correct?
Hi Bob .. I am pretty sure you need to meet the
qualifications for the trial. Mine was that way
Each trial is different. For instance they may hold
a trial on "dosage" of a specific BTK inhibitor… read more
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