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Leukemia

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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Hi, I Have CML And I've Been On Sprycel For About 7 Years Now.

Hi, I Have CML And I've Been On Sprycel For About 7 Years Now.

So the past couple of years have been great. I have been lifting weights working out been happy go lucky but the past couple of months I have started to feel fatigued and irritable. I can still doy job but I'm tired a lot of the time. I guess my question is..... Is there anyone else with the same problems? Does your fatigue come and go. It's getting to the point where my brother asks why are you always in a bad mood?. Can anyone relate? I'm I crazy or in vitcomstance or could it be my meds. My… read more

A MyLeukemiaTeam Member said:

I was very irritable after being diagnosed my doctor put me on antidepressants and has helped tremendously felt ready to hurt someone

posted about 2 months ago

Following A Pet Scan I Was Diagnosed With Both ALL And CLL.

Following A Pet Scan I Was Diagnosed With Both ALL And CLL.

A MyLeukemiaTeam Member said:

Please read my story for encouragement. Praying for you today.....karen

posted 2 months ago

Post Should Be Dated

Post Should Be Dated

Is there a way that post can be automatically dated by the site? Very confusing because you don’t know if you are replying to a new post or if it’s 6 months old (had that happen to me).

A MyLeukemiaTeam Member said:

Yes mine too but that disappears after a few days & you don’t know when it was posted

posted 2 months ago

Does Anyone Know If It’s Common For BCR-ABL Levels To Fluctuate?

Does Anyone Know If It’s Common For BCR-ABL Levels To Fluctuate?

My BCR -ABL was at 0 last month and now it was risen to 0.03. I thought once it was at zero it would stay there unless things got worse again. Anyone know? I’m a little freaked out.

A MyLeukemiaTeam Member said:

Thank you so much. I’m much calmer than before lol

posted 3 months ago

Lymphatic Drainage Massage

Lymphatic Drainage Massage

Is anyone familiar with lymphatic drainage massage? I've been on Imbruvica for CLL for about a half year and started lymph massage recently. Any thoughts, impressions or conclusions?

A MyLeukemiaTeam Member said:

Thank you Carol! I'm amazed at how lymphatic drainage massage has had such a positive affect on my treatment. I'm wondering why so many doctors aren't aware of this. I asked a top leukemia doc about… read more

posted about 2 months ago

My PCR Came Back The Same As It Did For Weeks Ago.

My PCR Came Back The Same As It Did For Weeks Ago.

My PCR came back the same as it did four weeks ago. I have been on bosulif for six months and it is gone down every time I have had it. This time my PCR this time has scarcely moved. Has anyone had this experience? Best to you all

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