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Leukemia

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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Know If It’s Common For BCR-ABL Levels To Fluctuate?

Does Anyone Know If It’s Common For BCR-ABL Levels To Fluctuate?

My BCR -ABL was at 0 last month and now it was risen to 0.03. I thought once it was at zero it would stay there unless things got worse again. Anyone know? I’m a little freaked out.

A MyLeukemiaTeam Member said:

Thank you so much. I’m much calmer than before lol

posted 4 months ago

Lymphatic Drainage Massage

Lymphatic Drainage Massage

Is anyone familiar with lymphatic drainage massage? I've been on Imbruvica for CLL for about a half year and started lymph massage recently. Any thoughts, impressions or conclusions?

A MyLeukemiaTeam Member said:

Thank you Carol! I'm amazed at how lymphatic drainage massage has had such a positive affect on my treatment. I'm wondering why so many doctors aren't aware of this. I asked a top leukemia doc about… read more

posted 3 months ago

My PCR Came Back The Same As It Did For Weeks Ago.

My PCR Came Back The Same As It Did For Weeks Ago.

My PCR came back the same as it did four weeks ago. I have been on bosulif for six months and it is gone down every time I have had it. This time my PCR this time has scarcely moved. Has anyone had this experience? Best to you all

Yes How Fo I Start Feeling Better To My Family And Myself

Yes How Fo I Start Feeling Better To My Family And Myself

A MyLeukemiaTeam Member said:

I been in this for three years the first year was difficult, I believe it comes with time and faith!, It did for me

posted 17 days ago

Hormones After Allogenic Transplant

Hormones After Allogenic Transplant

Hello all! I’m new here, I’m 24 years old and 4 years ago I had my bone marrow transplant. It went good but since then I had no menstrual cycle except last 2 years of fake period due to birth control pills. I stopped them recently because of side effects but I’m now with no period again… I’m wondering will I ever have a normal cycle again or should I always take a hormone pill… menopause symptoms are the worst! Is there a woman out there who has the same problems as me?? I just don’t know who… read more

A MyLeukemiaTeam Member said:

Hello! Thank you for answering! I search many gynaecologists and they said to follow hormone treatment cause my area down there won’t work without help.. and maybe do hormones for many years… I wish… read more

posted 4 months ago

Why Do I Feel Terrible?

Why Do I Feel Terrible?

I have just been diagnosed with CLL. I’m in early stage (0 stage according to my dr) and don’t have swollen glands (even tho they all ache) or spleen according to my scan and don’t need any treatment yet which is wonderful but yet my fatigue and pain are debilitating. My WBC is only 18,000. My diagnosis gave me reason as to why I was feeling all of that
My dr says to look for other reasons for my fatigue and symptoms. I have never experienced such fatigue in my entire life. No amount of… read more

A MyLeukemiaTeam Member said:

Of course CLL causes fatigue! I guess it’s worth a try to get another opinion to see if there is more going on! Being tired all the time is how I got my diagnoses in 2014 but naps really help me if… read more

posted 3 months ago

How Long Will A Drug Company Supply Your Drugs?

How Long Will A Drug Company Supply Your Drugs?

When I was diagnosed the drug company allowed me to have my medication, but for a year free. I want to know how long they do this for?

A MyLeukemiaTeam Member said:

Thankyou

posted 3 months ago

AML Relapsed

AML Relapsed

How do I tell my family and friends?

A MyLeukemiaTeam Member said:

My husband did not have a problem telling family,He just said god has spoken and if it is my time,I am out of here.

posted 5 months ago
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