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Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

I am in watch and wait mode for CLL after being diagnosed a couple of years ago. Pain and fatigue are what originally sent me to the doctor before diagnosis. Has anyone else experienced worsening pain and extreme fatigue before treatment?

A MyLeukemiaTeam Member said:

I am coming up on one year anniversary of finding out I have CLL,no treatment yet watch and waite. Now I have extreme headaches, bone pain from my hips to my feet, a rash all over my body and my medical doctor is running blood any other test on my liver be cause it's developed issues, I work full time and travel at least every other week to see my daughter and grandsons 3 hours away because she has to work on weekends herself, it gives me peace of mind to see them. I won't give in to this I keep going forward

posted over 2 years ago
A MyLeukemiaTeam Member said:

I will have weeks of good energy and then boom - extreme fatigue will hit me. I have no warning.

posted over 2 years ago
A MyLeukemiaTeam Member said:

Absolutely. These are the exact things that sent me to the doctor. The fatigue was terrible and the sweating too. After a lot of scans I think it was about six months before I was started on chemo for 6 months.
Been in remission for almost 2 years now....
Important that it was found early. 🙏

posted over 2 years ago
A MyLeukemiaTeam Member said:

I was diagnosed with CLL a year or so before treatment started. I was sleeping 20 hours per day. I could not hardly get out of bed. Now with treatment I have a hard time sleeping. I also have sinus issues which I think is a side effect of treatment.

posted over 2 years ago
A MyLeukemiaTeam Member said:

Luckily I just don't have the fatigue but I do have the occasional evening where I just don't feel great and want to go to bed early. It is rare. Right now all is well. some Hip trouble but not real bad.

posted over 2 years ago
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