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Has Anyone Experienced Extreme Fatigue Before Getting Treatment For CLL?

A MyLeukemiaTeam Member asked a question πŸ’­
Decatur, GA

I am in watch and wait mode for CLL after being diagnosed a couple of years ago. Pain and fatigue are what originally sent me to the doctor before diagnosis. Has anyone else experienced worsening pain and extreme fatigue before treatment?

May 6, 2019 (edited)
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A MyLeukemiaTeam Member

Yes...I also have fatigue and bone pain and I am in watch and wait. I also have CLL. As a wise CLL person told me, CLL is different for each of us. Some od us have n symptoms some have few symptoms and some many symptoms. The blood work does not tell the entire story.
I bruise very easy also, but my blood work does not support my symptoms.
The best part of CLL is have a wonderful, support network of people who understand and care.
We are in all the stages from watch and wait to end of life, but all of us are fighters!!!
Find the good in all you are going through, it makes it tolerable and sometimes even funny 😁.
Best of luck!

May 2, 2023
A MyLeukemiaTeam Member

I have always had severe fatigue. No different today. Very hard to function so I swim for enjoyment and exercise. I have declined treatment to the disgruntled doctors but after all, there is no cure. Why add more misery to misery?

May 5, 2022
A MyLeukemiaTeam Member

I have lately been experiencing extreme fatigue, if I let my self I would stay in bed all day. Approximately two years before diagnosis I would get very tired mid afternoon, I could not understand why.

February 4, 2023
A MyLeukemiaTeam Member

I am coming up on one year anniversary of finding out I have CLL,no treatment yet watch and waite. Now I have extreme headaches, bone pain from my hips to my feet, a rash all over my body and my medical doctor is running blood any other test on my liver be cause it's developed issues, I work full time and travel at least every other week to see my daughter and grandsons 3 hours away because she has to work on weekends herself, it gives me peace of mind to see them. I won't give in to this I keep going forward

January 18, 2020
A MyLeukemiaTeam Member

Kearie- I am 79- about 10 years in to CLL/SLL diagnosis. I started on Brukinsa about 13 months ago due to serious fatigue, low iron, swollen lymph nodes and spleen. The Brukinsa took care of that rather quickly and I have basically felt well since I started. I am currently pretty low energy, but I have been working on an important project for the past 6 months and have to back off. Fortunately, it is off an running so I can do just that. Sorry about pain in your spine. I have had none of htat. Night sweats were bad for a w hile. now occasional. wishing you a simple journey. It really helps to trust your medical team.. Be well... or at least as well as possible. I find I just have to be patient with myself from time to time....

November 10

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