I have been on midostaurin since going into remission from AML
FLT3 itd mutatiin. So far no problems, except a little nausea.
I was diagnosed w AML March 2019. Stem cell transplant Sept 2019 i have been on Rydapt since March 2019. Unfortunately i came out of remission July 2019 so doctor discontinued Rydapt as is no longer working. I am now having cytarabine infusion and also taking Venclexta daily. I had developed myeloid sarcoma as a second cancer in my neck. So far my body is responding well to this treatment...the largest of visible sarcomas have definitely shrunk. Will have another bone marrow biopsy and PET Scan this Thursday Dec 4. Hoping for good news!
Yes I took rydapt for one year after remission. I also have flt3 mutation. I’ve been off meds for two months. So far so good all counts have returned to normal levels. Hope to get a few more years because of this medicine
I have Fit3 also plus Ckit and that is why they are trying it. Started it today and so far so good.
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