Connect with others who understand.

sign up log in
Resources
About MyLeukemiaTeam

Connect with others who understand.

sign up log in
Resources
About MyLeukemiaTeam
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Treated With Midostaurin As An Inhibitor During Remission Of AML?

Has Anyone Been Treated With Midostaurin As An Inhibitor During Remission Of AML?

A MyLeukemiaTeam Member said:

I have been on midostaurin since going into remission from AML
FLT3 itd mutatiin. So far no problems, except a little nausea.

posted about 3 years ago
A MyLeukemiaTeam Member said:

I was diagnosed w AML March 2019. Stem cell transplant Sept 2019 i have been on Rydapt since March 2019. Unfortunately i came out of remission July 2019 so doctor discontinued Rydapt as is no longer working. I am now having cytarabine infusion and also taking Venclexta daily. I had developed myeloid sarcoma as a second cancer in my neck. So far my body is responding well to this treatment...the largest of visible sarcomas have definitely shrunk. Will have another bone marrow biopsy and PET Scan this Thursday Dec 4. Hoping for good news!

posted over 1 year ago
A MyLeukemiaTeam Member said:

Yes I took rydapt for one year after remission. I also have flt3 mutation. I’ve been off meds for two months. So far so good all counts have returned to normal levels. Hope to get a few more years because of this medicine

posted almost 3 years ago
A MyLeukemiaTeam Member said:

I have Fit3 also plus Ckit and that is why they are trying it. Started it today and so far so good.

posted about 3 years ago
A MyLeukemiaTeam Member said:

It is only for the Flt3 itd
Mutation AML. I have
been on it for five months.

posted about 3 years ago
Already a Member? Log in