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Are There Others Who Have Been Diagnosed With Acute Promylocytic Leukemia

Are There Others Who Have Been Diagnosed With Acute Promylocytic Leukemia

Would like to connect with other people who have APL leukemia but it is not listed as a search filter.

A MyLeukemiaTeam Member said:

Hi, I just spent 38 days at UPMC Hillman Center on the Leukemia floor! I had APL! I received Arsenic Trioxide and Atra pills for 38 days! Had bone marrow biopsy and no APL in my marrow! I am now on Consolation therapy! 16 weeks one month on and one month off and Atra every two weeks! Told there was a 80 to 90 percent cure rate!

posted almost 2 years ago
A MyLeukemiaTeam Member said:

We are a rare bunch! I also was diagnosed in January!

posted almost 2 years ago
A MyLeukemiaTeam Member said:

diagnosed 2 yrs ago. Johns Hopkins in Baltimore saved my life.

posted almost 2 years ago
A MyLeukemiaTeam Member said:

Yes, and they say a worse round is on the way. I have been in my house for 8 months. This bug scares me.

posted about 1 year ago
A MyLeukemiaTeam Member said:

After rounds of arsenic and tretinoin pills I am now in remission. Still have rounds of arsenic every other month 5 days a week till the end of Aug and tretinoin 2 weeks on then 2 off. I just started back up today on chemo and hated to go and be around people with this virus issue but no choice.

posted almost 2 years ago
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