Would like to connect with other people who have APL leukemia but it is not listed as a search filter.
Hi, I just spent 38 days at UPMC Hillman Center on the Leukemia floor! I had APL! I received Arsenic Trioxide and Atra pills for 38 days! Had bone marrow biopsy and no APL in my marrow! I am now on Consolation therapy! 16 weeks one month on and one month off and Atra every two weeks! Told there was a 80 to 90 percent cure rate!
We are a rare bunch! I also was diagnosed in January!
diagnosed 2 yrs ago. Johns Hopkins in Baltimore saved my life.
Yes, and they say a worse round is on the way. I have been in my house for 8 months. This bug scares me.
After rounds of arsenic and tretinoin pills I am now in remission. Still have rounds of arsenic every other month 5 days a week till the end of Aug and tretinoin 2 weeks on then 2 off. I just started back up today on chemo and hated to go and be around people with this virus issue but no choice.
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