I am interested to learn from those who have had a stem cell transplant for AML or any leukemia for that matter. I would like to ask what you percent of donor cells did you have after transplant? How long since your transplant. Anyone who transplant has not cured? Thanks for any information.
Glen, It is so nice to hear your answer and that you have done so well. It is indeed an inspiration for me who is now at 14 months post transplant with my youngest sister's cells but she was 60. We celebrated our 51st anniversary in the hospital. Meanwhile, our daughter was doing IVF and is thankfully now 4 months pregnant. Keep enjoying your miracle life and miracle children!
They used my own stem cells for my multiple myeloma 7 years ago. Take 5 mg of Revlimid every other day. The cancer is very painful and being treated with Oxycodone. You can contact me for more info.
I received my donor cells For AML leukemia from my sister 14 months ago. I was 100% donor cells at the time of the first test for that, I believe it was about one month after transplant. I too am interested to know if there is anyone who was not cured. My doctor told me that transplant for AML has a 70% cure rate.
Hi, I had transplant 6/1/2020
I was 73% donor at 100 days and am now at 100% 1 year post. It took me awhile to fully engrafted I also had platelet issues and continued to need transfusions 6 months after transplant. Finally they put me on Promacta to boost my bone marrow production and so far so good. Numbers have finally normalized. My doctors don’t use the word cured, they say complete remission. You will always have to be on the lookout for a relapse but the longer you stay in remission the less likely you will have the cancer return is what I was told.
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