Hang in there. I would like for you to think About finding a good oncologist. I have cll and retuxin drips for four Mondays in March. Didn't work as well as it did so oncologist called for genetic blood test. My oncologist them put me on Venclexta and I'm doing well. After retuxin drip I did experience neuropathy on fingers but it went away.

Bobspez: exactly the type of info that we're looking for. Thank you.

Ok, so the neuropathy is possibly more common than we thought. Evidently, you roll the dice as to where it might show up. We aren't treating it successfully either. Is anyone? I'm still looking.

The double vision...now we have that answer as well. It happens to Diane fairly often and we have an appointment with a neuro (for the brain fog and the double vision) coming up, following a recent EEG and blood test for brain chemial levels.

Well, I guess that I'll just stay close and keep an eye on her.

are you taking meds. for CMML? I was diagnosed with CMML in 2019. so far just monitoring blood. I don't know what to expect.

Yes, we plan to do some further checking. It's been a good while since she's seen him so I'm sure that her PCP will need to give her another referral. It may not even be the med that I quoted that she was taking. We're going to do more investigating.

Thank you for your response,

K.C. and Diane

KC and Diane. I've not heard of that. Wondering if you should check out Mayo clinic or the like. And would a call to her oncologist be in order? Sorry I can't be of more help. Prayers your way and keep us posted!