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I Notice There Is A Difference Between The Postings With People Afflicted With CLL Vs. AML.

I Notice There Is A Difference Between The Postings With People Afflicted With CLL Vs. AML.

Many of the post with CLL it seems like the patients have good and bad days, but they are still able to function and, in some cases, return to work. I have AML and I am constantly looking for some ways to be painless and do stuff like stretching exercises. Between different mixes of Diloded, Methadone, CBD and small doses of THC I am able to find some relief, but I am either stoned (not complaining too much about that) or tired. Does anyone else feel the same way?

A MyLeukemiaTeam Member said:

Hi Pat, absolutely. For me, I have a genetic mutation that makes remission very difficult to sustain. A SCT was my only hope for a possible long term remission. I think the whole process was such a shock to my body that it’s going to take some time to get on my feet. The GVHD is manageable at this time. I hope you are feeling better!

posted 8 days ago
A MyLeukemiaTeam Member said:

Hi Pat, SCT is stem cell transplant. Bone marrow transplant is a stem cell transplant. 😊

posted 6 days ago
A MyLeukemiaTeam Member said:

Hi Annette. Thank you for the information. Not being to hip to the lingo, what is SCT? I do understand the GVHD.

posted 7 days ago
A MyLeukemiaTeam Member said:

Hi Pat, Yes I still would have chosen my path to remission. I don’t like GVHD, but so far mine is manageable! I choose life. I do however realize for some you exchange one disease for another, my choice was all worth it!

posted 9 days ago
A MyLeukemiaTeam Member said:

I wanted to ask Terrance and Annette additional questions. Knowing you have both developed GVHD, would you have chosen this path to remission if you would have known the risks of GVHD?

posted about 1 month ago
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