Many of the post with CLL it seems like the patients have good and bad days, but they are still able to function and, in some cases, return to work. I have AML and I am constantly looking for some ways to be painless and do stuff like stretching exercises. Between different mixes of Diloded, Methadone, CBD and small doses of THC I am able to find some relief, but I am either stoned (not complaining too much about that) or tired. Does anyone else feel the same way?
Hi Pat, absolutely. For me, I have a genetic mutation that makes remission very difficult to sustain. A SCT was my only hope for a possible long term remission. I think the whole process was such a shock to my body that it’s going to take some time to get on my feet. The GVHD is manageable at this time. I hope you are feeling better!
Hi Pat, SCT is stem cell transplant. Bone marrow transplant is a stem cell transplant. 😊
Hi Annette. Thank you for the information. Not being to hip to the lingo, what is SCT? I do understand the GVHD.
Hi Pat, Yes I still would have chosen my path to remission. I don’t like GVHD, but so far mine is manageable! I choose life. I do however realize for some you exchange one disease for another, my choice was all worth it!
We never share your personal information with anyone.