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I Notice There Is A Difference Between The Postings With People Afflicted With CLL Vs. AML.
Many of the post with CLL it seems like the patients have good and bad days, but they are still able to function and, in some cases, return to work. I have AML and I am constantly looking for some ways to be painless and do stuff like stretching exercises. Between different mixes of Diloded, Methadone, CBD and small doses of THC I am able to find some relief, but I am either stoned (not complaining too much about that) or tired. Does anyone else feel the same way?
Hi Pat, absolutely. For me, I have a genetic mutation that makes remission very difficult to sustain. A SCT was my only hope for a possible long term remission. I think the whole process was such a shock to my body that it’s going to take some time to get on my feet. The GVHD is manageable at this time. I hope you are feeling better!
Hi Pat, SCT is stem cell transplant. Bone marrow transplant is a stem cell transplant. 😊
Hi Annette. Thank you for the information. Not being to hip to the lingo, what is SCT? I do understand the GVHD.
Hi Pat, Yes I still would have chosen my path to remission. I don’t like GVHD, but so far mine is manageable! I choose life. I do however realize for some you exchange one disease for another, my choice was all worth it!
I wanted to ask Terrance and Annette additional questions. Knowing you have both developed GVHD, would you have chosen this path to remission if you would have known the risks of GVHD?
Is There Difference Between All N Acl Cancer
My Wife Has Just Died From AML With TP53 Mutation, No One In Family Has Had This Only Bowl Cancer. Why?
Has Anyone Had Any Bone Issues With CML, ALL, AML, CLL?
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