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What Is Up With Wait & Watch? It Seems To Me That CLL Is The Only Diagnosis For Which Early Detection Is Irrelevant. Why Wait To Treat?

What Is Up With Wait & Watch? It Seems To Me That CLL Is The Only Diagnosis For Which Early Detection Is Irrelevant. Why Wait To Treat?

My mind is having difficulty wrapping itself around allowing affected cells to travel through my blood to all parts of my body, and waiting until tumors form to treat. Can anyone explain the logic in this?

A MyLeukemiaTeam Member said:

I agree about worrying about CLL spreading through my body also! I just keep reminding myself that other types of cancer are so much worse.

posted 6 days ago
A MyLeukemiaTeam Member said:

Your Dr is not waiting for tumors to form. Your lymph nodes may get larger but no tumors. When your blood work shows that levels have reached a certain point, he will probably start treatment then. Watch and wait could last for years. I was diagnosed with CLL in August of 2019 then started treatment in May of 2020. I take an oral treatment Calquence. My main side effect is fatigue but it's getting better. Write a list of questions to take with you when you see your Dr and they should answer your concerns. Faith in your Dr is very important

posted about 1 month ago
A MyLeukemiaTeam Member said:

I was wondering the same thing to that question. I’m not complaining about watch and wait but it’s also caused me a great deal of anxiety now because every ache and pain I get I’m wondering if it’s the CLL going through my body. I have a hard time relaxing and getting it off my mind.

posted 11 days ago
A MyLeukemiaTeam Member said:

I was diagnosed in 2007. On w&w for 11 years until fall of 2018. Then began treatment with imbruvica.

posted about 1 month ago
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