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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Ear Has My Heart Beat In It.

A MyLeukemiaTeam Member asked a question 💭
Jensen, UT

My ear has my heart in it that is very loud and it has given me a head ache. I have been taking Calqence (100mg) for about a month

June 18, 2022
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A MyLeukemiaTeam Member

I did have that issue and I was also taking Oneureg. I didn't think it could be the medicine.

June 30, 2022
A MyLeukemiaTeam Member

I can even go as far as to tell you that I experience the tinnitus only when I am on my 14 days of taking Oneureg and that on my 14 days off each cycle, it goes away. We have monitored BP to ensure that wasn’t the cause. My oncologist and my PCP found no other reason other than the drug and said they had no cause for concern. I had a spinal tap and they know that the AML hasn’t crossed the blood brain barrier as the tap was done after I was in remission. I hope that eases your mind a little.

July 3, 2022 (edited)
A MyLeukemiaTeam Member

I have been having the same issue and I am on Oneureg 300mg 14 days on and 14 days off and it seems way more prevalent during my 14 days on. My oncologist didn’t seemed concerned when I told her about it. I am on this med pending stem cell. Hope it makes you a little more comfortable knowing I am having the same side effect.

June 24, 2022

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