Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Jonesville, NC
July 16, 2022
 · 
Reactions
A MyLeukemiaTeam Member

if you feel shitty depressed and can not stand bad news. don’t read on..
ok
ready
my fatigue has never gone away. and i
am 3 months off chemo and all
meds. 2 years in remission and 3 negative bone marrow biopsy’s. multiple myeloma/ plasma cell leukemia
i just learned how to deal with it.
extra strength tylenol hot showers
lots of prayers and understanding from my friends and family.
it’s a trade off i’d rather be in remission with the side effects. than have the damn disease without the side effects

love and understanding and gratitude from Nashville

“I have cancer!! Cancer does NOT have me”

August 23, 2023
A MyLeukemiaTeam Member

We are survivors but its ok to say how much we dislike having to go thru this cancer...It is no cake walk and I'm tired of being sent around for tests but I sure do want a few more years to help & watch my Grandkids grow up..

August 23, 2023
A MyLeukemiaTeam Member

I am 62 years old and was diagnosed with AML in July 2020.
I had my Bone Marrow Transplant in December 2020.
I am 1 year and 7 months post transplant.I vividly remember wondering if I was ever going to get past this debilitating fatigue. I am happy to report that I am finally getting my energy back and the debilitating fatigue is gone.
That is not to say I don't have to take an occasional nap but it is no longer constant.
For me it was the worst part. It does get better. Once my numbers started improving I could notice the increased energy and the constant fatigue decrease dramatically.
It just takes time but it is worth the wait.

July 16, 2022
A MyLeukemiaTeam Member

I have not had treatment thus far. However, I can say that fatigue comes & goes. When I am exhausted, I just have to have a pajama day

January 15, 2023
A MyLeukemiaTeam Member

multi vit., c, d, e, b complex, zinc, fish oil, along with allergy pill (helps with the bone pain) Claratin

October 12, 2023

Related Questions

View All
A MyLeukemiaTeam Member asked a question 💭
Lees Summit, MO

A MyLeukemiaTeam Member asked a question 💭
Colchester, IL