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Fatigue and Leukemia

Posted on July 21, 2019




Extreme, persistent fatigue is a common symptom among people with leukemia. Fatigue can be caused by leukemia itself. Fatigue can also be a side effect of treatments like chemotherapy and radiation.

Many members of MyLeukemiaTeam find that fatigue greatly interferes with their lives. “My CLL (chronic lymphocytic leukemia) makes me so tired some days I can’t function,” one member commented.

Another member wrote, “My fatigue comes in waves. I get about three good hours a day.”

Professional and caregiving obligations make dealing with fatigue even more challenging. “How do I feel better?” a member asked. “I have to work full time. It’s incredibly hard.”

“Fatigue is especially hard for my 10-year-old to understand,” a mother on MyLeukemiaTeam commented.

Some members attempt to hide their fatigue from friends, family, or colleagues. “My family doesn't understand how fatigued I really am because I put on a smile and act as if I’m okay during family get-togethers. They don't see the new normal and how I really feel.”

Another member shared, “I don’t want to bother anyone or complain about my fatigue.”

Members encourage teammates struggling with fatigue by sharing approaches that have helped them gain more energy, accomplish tasks, and deal with their emotions.

  • Exercise: “Any type of physical activity will help with the fatigue. Take it one day at a time.”

  • A little activity at a time: “I am in the process of moving. It is more difficult because of the fatigue from my CLL, but I am doing the work as my body tolerates it, and have allowed plenty of time.

  • Appreciation for good days: “Today is the first day in a long time I am feeling good. Normally I am so very fatigued. I feel blessed today and will not worry about tomorrow.”

Can you relate? How do you deal with fatigue? Share your insights in the comments below or directly on MyLeukemiaTeam.

A MyLeukemiaTeam Member said:

I agree!--jmb

posted about 21 hours ago

hug

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