Thank you for the suggestion of palliative care, you are funny too! We have to find humor as we nagavate this disease😄. Nice to laugh.
Hope all goes well for you!!

I've wondered that myself. I've asked, but haven't gotten any answers. I'm due to have my first 3-month f/u, since my remission, with my Hematologist and my MS Neuro next month. If I get any answers that make sense, I will share with you and the team. Be well. 💜🤗

This web site we are on has an article about that may be helpful.

Me as well. No one seems to have a handle on me. MDS-RS to MDS/MPN RS Sf3B1 to CMML 1 SF3b1 Del 13q14 w/elements of CLL and Splenic nodules that we are going to have to identify and deal with (Already had the Ultrasound and the CAT) Oh just was DX by Rheumy for Undefined Connective Tissue Disease. I've had varying issues for years. No one wants to give me the all inclusive diagnosis, even though I'm paying for one. If my DNA is unraveling, it would be nice to know what to expect. Oh and I have one of the best Hematologist in the Northeast. To answer the question: consider seeing a Palliative care Doctor. They can guide you in some of your issues. Mine sent me to pain specialist who have done a terrific job of playing Whack a Mole with my pain.

Maybe the oncologist, or your GP, could run tests to see if anything else is wrong. I'll be interested in any answers you can post 😊