Dave there is no cure foe cll at this time. Think of it this way....you have a bag of options and your first option is your immune system. That is what is fighting your cll now. Controlling your blood work numbers. The longer that works the longer you save your other options for when you need them down life's road.

Dave, I was diagnosed with CLL on Oct 6th, 2020 and went to CTCA in Zion Illinoisto figure out what was going on. I was told by my doctors “if you are going to have leukemia, you have the best kind to have.” I guess if you are left handed it is best to lose your right arm.
After a couple of days of tests and scans, CLL was confirmed. At that time I was told until white cell count goes over 200k or if I start having infections or some other things, we would be in a waiting period. I was told it was caught early so probably won’t have to do anything for atleast 5 years, if ever.
My bloodwork in July 2020 was normal. Then joined the cool kids with Covid in September. Then get hospitalized with pneumonia for the first time in my life. This is when I got my initial diagnosis with a white count of 50k
Went back in December 2020 and white cell was 125k.
Then I go back on Jan 18, 2021 and find out I have CMV infection (Cytomegalovirus). I got to spend 34 days fighting that infection. Got home February 20. And back on March 8th with cellulitis in my arm. Never had that before.
Well heck. That was 2 good infections in 2 months. At that time I was put on a BTK inhibitor. Almost 2 1/2 years later white count is 30k ish.
Again just a waiting until things change. As of July 20, 2023 I was told “your leukemia is well controlled at this time”
I just have to trust my doctors to keep me going. And I have full faith and trust in Dr A and Dr R.
Now, do I like the wait and see? NO. I would rather it be GONE. But, I will do what they say and take my meds, see them when then say. And keep in living.
Just dealing with nap times many days.

This link will take you to several CLL expert doctors explaining when they start treatment for CLL.

https://healthunlocked.com/cllsupport/posts/136...

IMO any doctor that uses a specific WBC level to start treatment should consult the NCCN guidelines https://education.nccn.org/node/94052
and the iWCLL2018 guidelines for treating CLL.
https://pubmed.ncbi.nlm.nih.gov/29540348/

See: https://cllsociety.org/newly-diagnosed/
https://cllsociety.org/cll-sll-patient-educatio...

Len

Thanks for your input. Do you feel tried and fatigued all the time? Thats what bothers me the most. Don't have enought energy to live my life like I'm use to.

Thanks for your reply. I guess the thing that bothers me the most is the constant fatigue. However, I've been told my oncologist that treating CLL might not help the fatigue but could actually make it worse. Recently I developed some sort of breathing difficulty and my oncologist said that this is probably connected with the CLL. He put on a high does of Cipro for ten days along with a regiment of steroids. After being on those meds for about 4 days I felt much better along wit the fatigue. But since I've been off those meds I'm sort of back to the same issues, except the breathing issue is better. All in all, I think the breathing problems related to pneumonia. The oncologist I'm seeimg is associated with a well known cancer research hospital and I have a lot of faith in him but he seems to be reluctant to make the decision on starting treatment. I guess thats just the way the medical field is today.