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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLeukemiaTeam Member asked a question 💭
Arroyo Grande, CA
September 9, 2023
 · 
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A MyLeukemiaTeam Member

I have CNL as well. We're members of a small club. I've been taking Jakafi for 2 years with good results and hope it continues to be effective.

December 15, 2024
A MyLeukemiaTeam Member

Initially, I took 10mg every 12 hours but now only 5mg as my liver function levels started to increase. It's been 9 months on the lower dose and it continues to work well for me. I feel extremely fortunate to feel so healthy with this disease lurking in the background. Hopefully, you're getting good results too.

April 4
A MyLeukemiaTeam Member

I also have CNL. I take 20 mg 2x each day

April 2
A MyLeukemiaTeam Member

What dose of jakafi do you take?? Glad to hear you are getting good results.

April 2

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