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A MyLeukemiaTeam Member asked a question 💭
Bayville, N.J
September 23, 2023
 · 
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A MyLeukemiaTeam Member

Sorry I did not follow exactly. I think your saying that you have had CML for 11 years, and had to go on and off treatment, but that you stayed undetected even with change of med. I was diagnosed in 1998, but did not start TKI till Oct. of 2000, and then I was undetected by 2002 with a 0.000 BCR/Abl. I continued to take my Gleevec everyday for 18 years even though I was undetected. Then I had to stop in my 18th year due to severe edema. Now I have been totally off of my TKI since Feb of 2018, therefore, I will be 6 years of TFR Feb of 2024. I have not had any TKI drug for almost 6 years now. I was looking to see if anybody has gone beyond the 6 year mark with no treatment at all. Glad your doing good, and that you did not lose your remission even with change of treatment drug.

September 30, 2023
A MyLeukemiaTeam Member

I got my cml January 17,2012 I got remission right away I really didn’t go out tell this year and we changed the medication and I am back in it I did have to take other medication off and on because of side effects but I wasn’t out of remission so 11 years

September 30, 2023

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