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A MyLeukemiaTeam Member asked a question 💭
New Braunfels, TX

Question…been on sprycel 100mg for almost 3 months (first bcr-abl test sch jan 4th) my EO# .32 (.30 high) and 5.4% (3.0 high) high again (not as high as at dx, but close) and LY% high,LY# still in range. Any thots?

Thanks in advance for ur response. Mary

December 29, 2023
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A MyLeukemiaTeam Member

That all looks wonderful, love prime rib, the pinker the better! Thank you, as always, for ur response and encouragement! Btw…it was the frosted mini-wheats! Glucose back down to 95!

Hope u and ur family have a safe, happy and healthy new year! Congrats on number! Hoping mine good/great too!! Mary

December 29, 2023
A MyLeukemiaTeam Member

I had some test that showed a little high and some showed a little low. They were close to the normal range. I would ask my Dr about them and he always told me they were nothing to be worried about, so don’t worry. I think the only tests they are worried about is WBC, RBC, platelets, and BCR-ABL. Good luck on your BCR-ABL test. Mine just came in a couple days ago at .0032%. It just a little lower than the previous one but my first one was 35%, so I am headed in the right direction. Take care and Happy New Year Mary. I made all the food for Christmas except the Ham. Nice pink rib-eye, Jamaican Jerk Turkey breast as well as a garlic/ butter turkey breast, Mac and cheese, mushrooms, Italian broccoli with parmigian, baked beans, and mashed potatoes and gravy not in the picture. I hope your Christmas was wonderful too

December 29, 2023
A MyLeukemiaTeam Member

James373, this Sprycel is playing havoc with me. Started at 100 mg and had to reduce to 80 mg. and two weeks ago we had to stop the 80 mg not sure what's next. How long did it take until your side effects were manageable and your quality of life got better?

January 1, 2024
A MyLeukemiaTeam Member

Wow Rich! Incredible meal you put on for Christmas! Am sure it was divine and there were no leftovers! Happy New Year:):):)

December 30, 2023
A MyLeukemiaTeam Member

This med almost killed me twice. Tasigna is the way to go and sprycell left me sick for a year straight and my Oncologist says " any doctor that prescribes this is doing it for the profit nit the patient and you will not remiss for more than a year. But your organs and eyesight will pay a toll I never expected. Peripheral neuropathy that's 10 tiltimes worse then bone pain

April 30, 2024

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Dallas, TX

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