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Real members of MyLeukemiaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

medicine effects and side effects. very scary to me.

January 16, 2024
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Reactions
A MyLeukemiaTeam Member

No reaction at all.

January 18, 2024
A MyLeukemiaTeam Member

I'm with you on that.

January 16, 2024
A MyLeukemiaTeam Member

I found the symptoms of CLL to be be quite scary and uncomfortable I’m not saying a 2 year clinical trial on Ibrutinib & Venetoclax was a cakewalk but it Was easier for me than dealing with CLL God has our back especially when we go through rough times He has given me 3 years of a beautiful undetectable remission 🙌 Soultime is right no one can help unless you have the name’s of your drugs You also need to know your Karyotype in order to know if you are on the right drugs and I would be sure your hematologist is a good one Don’t be afraid to get on oral medication for your CLL There is always something to remedy the side effects Overall you will feel better and be happier. Take charge do some research to make sure you are on the right treatment road You can do it !!!
GB

January 16, 2024
A MyLeukemiaTeam Member

Hi Cynth. If you post on here what the name of the medicines are, people will let you know what their experiences were/are. Everybody's system/body is different and I've seen where some people ask the oncologist to start with a low dose vs. the recommended dose to see how their body adjusts. And I've seen where the oncologist has to change/try another type of medicine if one's system can't handle the one initially prescribed. Ask questions of your oncologist and absolutely here on this wonderful and supportive forum:):)

January 16, 2024
A MyLeukemiaTeam Member

I have had CLL since 2013. I felt a few lymph nodes under my arm and one on my neck.
My Dr talked to me about starting the Chemo IV and Chemo pills.
Well, I just finished my last Chemo IV on January 10th.
The Chemo pills were started about a month after the IV.
With both the IV and pills I feel great, no side effects at all.

January 17, 2024

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