I have CLL and experience bone aches. Today it is in my shoulders. Also experience red spots on my skin and itchy skin.

Hi Rich. Have you mentioned your fatigue and body aches to your oncologist and your regular doctor? Has your regular doctor done blood work to see if you are anemic, Vit D deficient or B12 deficient? Those are just a starting point as to what may be also causing your fatigue. Dehydration can also cause fatigue. Also other medications can affect your body aches and fatigue. Maybe start with your regular doctor to rule out deficiencies then go from there? All of our bodies are so different and with what we have there are no cookie cutter answers so to speak. Fatigue is definitely part of CLL...has been my primary complaint for years and years, but I was also deficient so that was adding more to my fatigue.

Thanks Jeff! So, it looks like my schedule is similar...nice to know. Hope you're doing well!

Rich, I go about 3 months between doctor visits. I’m on Imbruvica and usually feel pretty good. I do have bouts of fatigue from time to time.

Thanks for your input! I'm currently on Gabapentin for neuropathy and also Levothyroxine for my thyroid. I'll have to do some more research on these meds. Hope you are doing well!