I had 2 cycles of decitabine and had a Bone Marrow Bx this past Tuesday May 14. Report came back that my blast have increased, which was very upsetting. So, I will be back on the decitabine as well as Ventoclax 400 mg. However, Ventoclax is FDA approved for AML, but not MDS. They can use it off label, but it needs to be approved. According to my insurance Ventoclax is $12,000 for a month supply. That's ridiculous. They are trying to get me to transplant.

I am only on Azacitidine and I have had Intermediate risk MDS for over three years now. How are your treatments going?